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Summary of the Outcomes of SPPC Amendments to the Assisted Dying for Terminally Ill Adults (Scotland) Bill

SPPC worked with Bob Doris MSP to submit over 40 amendments to the Assisted Dying for Terminally Ill Adults (Scotland) Bill.  

Changes Proposed by SPPC/Bob Doris MSP and Agreed by the Committee 

Reasons for Seeking an Assisted Death 

The Coordinating Medical Practitioner (CMP) must as part of the assessment process “enquire about and discuss the person’s reasons for wishing to be lawfully provided with assistance to end their own life”. Strangely the Committee also voted against SPPC amendments requiring the reasons to be documented in the Statements which conclude the AD assessment (and sanction AD). 

Social Work Assessment 

The CMP must inform the person seeking AD that they can ask to be referred for a social work assessment, and inform them of the potential benefits of such an assessment. 

Reducing the discretionary nature of referral for specialist opinion during assessment for AD 

Where the CMP has any doubt about the capacity of a person seeking AD they MUST refer the person to a specialist. (previously the Bill said “MAY refer”).  

Where the CMP has any doubt about whether the person seeking AD is “terminally ill” they MUST refer the person to a specialist. (previously the Bill said “MAY refer”).  

Changes Proposed by SPPC/Bob Doris MSP and Rejected by the Committee 

Definition of terminal illness 

SPPC amendments to insert a 6-month prognosis into the definition were rejected. 

Coercion 

SPPC amendments to insert a definition of coercion into the Bill covering undue pressure or influence from: “the person’s own beliefs about themselves; any other person; the expectations of society; the health and social care system; the state.” were rejected. 

Mandatory Referral to Specialist Palliative Care 

Amendments to require anyone seeking AD to be referred for a specialist palliative care assessment were rejected. However, an amendment by Jackie Baillie MSP requiring the CMP to inform the person seeking AD that “that they can be referred for a palliative care assessment to explore whether any additional support could be provided to them” was agreed. 

Reducing the discretion of the CMP in terms of what may be explained, discussed and advised during assessment 

An amendment was rejected which would have required the CMP to explain and discuss the following (the Bill currently allows the CMP to explain and discuss these topics “in so far as the CMP considers appropriate”: the person’s diagnosis and prognosis; any treatment available and likely impact of it on the person’s terminal illness; any palliative or other care available; the nature of the substance that might be provided to assist the person to end their own life (including how it will bring about death).  

A similar amendment would have required, without qualification, the CMP to advise the person to: inform their GP they are seeking AD; discuss the request with those close to the person.  

Vulnerable Adults 

SPPC amendments which would have required the CMP, as part of the assessment, to ask the relevant local authority whether they held any information which might indicate whether a person might have a preexisting vulnerability was rejected. Related amendments which would have mandated a referral for social work assessment if vulnerability was identified or suspected was rejected. 

CMP Assessment Report 

SPPC amendments requiring the CMP to produce a report detailing: 

  • The reasons the person gave for seeking AD 
  • What evidence was gathered and used to inform the decision 
  • The reasons the practitioner reached their judgement 

were rejected. 

Protracted Dying 

SPPC amendments to require SG to make regulations about handling cases where death does not follow the taking of the lethal substance within a reasonable time frame were rejected. 

Administration and regulation of assisted dying services 

SPPC amendments requiring that SG produce regulations about the regulation and oversight of persons who carry out AD under the act, to ensure the safety and wellbeing of the people provided with AD including: regulation of settings where AD may or may not take place; the role of HIS and the Care Inspectorate in regulation and scrutiny; and a process to raise concerns about the provision of AD to a person were all rejected. 

Amendments to Assisted Dying Bill

SPPC is seeking changes to the Assisted Dying for Terminally Ill Adults (Scotland) Bill by encouraging and supporting MSPs to submit relevant amendments and/or by supporting relevant amendments developed by other organisations.

The changes we hope to see reflect the points SPPC has previously raised with the Parliament in written and oral evidence.

SPPC’s suggested amendments focus on:
1. Strengthening safeguards for vulnerable people (as well as specific groups this means potentially anyone towards the end of life).
2. Protecting and promoting the practice and provision of palliative care.

In formulating possible changes SPPC’s primary concern has been the safety of individuals. The resource implications of particular amendments has not shaped SPPC’s approach to the Bill. 

You can read more detail of SPPC’s suggested amendments in the documents below:

 

SPPC Response to Public Health Scotland strategy consultation

SPPC has responded to Public Health Scotland’s consultation on its draft strategy for 2025-2035.

Key points

  • The draft PHS strategy currently excludes a significant section of Scotland’s population - those whose health is deteriorating and in irreversible decline.
  • This is particularly important given the context of Scotland’s aging population. Regardless of work on prevention, over the next 20 years increasing numbers of people will be living with serious illness and advanced multi-morbidity, and more people will be dying each year.
  • Public health approaches can improve the wellbeing of these people.

Key recommendations

  • Explicitly mention ‘wellbeing’ alongside ‘health’ within the strategy.
  • Consider how a public health approach can improve the wellbeing of people who are seriously ill or dying.
  • Be clear within the strategy that a public health approach incorporates efforts across the whole life course
  • Adopt an “end of life” lens in PHS when gathering and analysing data to support more effective policy-making.

The full response can be viewed here: SPPC response to PHS Strategy Consultation 

SPPC’s response to the Long Term Conditions Strategy Consultation

SPPC has responded to the SG consultation on a new policy framework for long terms conditions.

You can download and read SPPC’s response here.

SPPC Achievements 2024-25

SPPC has published an Annual Report Summary 2024-25, highlighting key achievements and pieces of work over the last year. 

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