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Sharing Current Scottish Practice

This blog provides an opportunity for people to share examples of current Scottish palliative care practice that might be of interest to the palliative care community more widely. If you know of work underway that might be relevant for sharing on our website, please get in touch.

Poster abstracts of the month: February

The SPPC Annual Conference in 2016 featured 36 poster displays, sharing work and research underway across Scotland. Each month, this blog focuses on the content of a few of these posters. This month, we focus on:

Developing Documentation for End of Life Care

Author(s)

Farquharson J

Following the recommendations of the Neuberger Report1 on the use of the LCP and subsequent guidance from SG we developed a means of recording, evidencing and auditing end of life care (EOLC) which met requirements of the SG’s four principles.

Thirteen key objectives were agreed in relation to evidencing and auditing appropriate EOLC. These were translated into an End of Life Care Record (EoLCR).

The project comprised two stages:

Stage 1 (5 week pilot)

ž Ward A: Patients identified as being in the last days/hours of life, care documented in EoLCR

ž Ward B: Patients identified as being in the last days/hours of life, care documented in Personal Care Records (PCR).

ž All data compared against the 13 objectives

ž EoLCR rolled out to all wards.

Stage 2 (Retrospective Audit)

A retrospective audit was undertaken of all deaths within the hospice over 3 months of implementation

We aimed to develop a robust means of evidencing EOLC which followed SG’s 4 principles. This relates to NHS Scotland’s 2020 vision that care will be provided to the highest standards of quality and safety, with the person being centre of all decisions.

The retrospective audit showed improvements in recording EOLC.

Using the EoLCR allowed us to evidence the principles of good EOLC especially in relation to nutrition, hydration and communication with patients/ families.

Development of the Scottish Acute Palliative Care Clinical Nurse Specialist Forum

Author(s)

Ewan D

Hospital palliative care teams have developed inconsistently over the past few decades and differ in their structure and numbers of healthcare professionals involved. The main role of an acute hospital palliative care team is to work collaboratively with other healthcare clinical specialties in an advisory, supportive and educative capacity to improve care delivered to palliative patients and families. The clinical nurse specialist in palliative care provides the backbone to these services across Scotland but with increasing clinical workloads, the demands on other key dimensions of the service such as research/audit/quality and service improvement can suffer. The founder of the group wanted to heighten the work that hospital palliative care teams do and provide a forum for acute palliative care clinical nurse specialists to network, provide information and support and collaboration on joint initiatives for practice and service development for hospital palliative care services across Scotland. The group developed named the Scottish Acute Palliative Care Clinical Nurse Specialist Forum consists of 30 members from 10 health boards across Scotland. The aims, objectives and workplan for the group are displayed on the poster along with contact details.

Difficult conversations with families and patients about end of life care after stroke: what are the educational needs of health care professionals?

Author(s)

Bailey F et al

This poster shows the results of a survey monkey in to the training and educational needs around having difficult and sensitive conversations with patients and families after an acute stroke. The participants were asked 9 questions related to their experience of this difficult area of work and what they felt were the most important areas for improving their own practice in future. This was the basis for a new STARS (Stroke Training Awareness Resource) module which was published on line in January 2016.

Does a pre-visit phone call result in improvement?

Author(s)

Smyth S

An area for improvement suggested by the Care Inspectorate was to 'consider' an audit of medication procedures in the CHAS at Home (CaH) Teams. We have four CaH Teams, one based at Rachel House, Robin House, Inverness and Aberdeen. Audits were carried out in 2015 and 2016 looking at the reviewing of the medication chart at the Pre Visit Phone Call and then on the arrival at the house. The five audit questions were based upon standards set out in the Standard Operating Procedure for Checklists were introduced between round one and two looking at standardising the pre visit phone call, preparing for a visit an on arrival at a visit checks.

The focus of this poster is looking at one of the five questions, 'Was a pre-visit phone call made to the parent/ carer to confirm the visit and check for if there have been any changes to the medication prescription since CHAS's last contact with the family?' The child's prescription often will have been altered by our acute and community colleagues. The poster demonstrates the before and after results following the introduction of the checklists and the feedback we later received from the Care Inspectorate.


Poster abstracts of the month: January

The SPPC Annual Conference in 2016 featured 36 poster displays, sharing work and research underway across Scotland. Each month, this blog focuses on the content of a few of these posters. This month, we focus on:

Bereavement Support in a Hospice Setting

Elliott J, Jackson S and Taylor M

Bereavement can be a difficult process for people however evidence suggests that sharing experiences and feelings can help to lessen the effects on individuals. It is also known that people can struggle to access the right support at the right time following bereavement. Hospices are at the sharp end of caring for people who are dying and offering support to their families is a fundamental part of specialist palliative care. The patient and family support team at Accord Hospice consists of trained counsellors and volunteer bereavement support workers who proactively offer bereavement support and try to do so in innovative ways to meet the varying degrees of need of bereaved families within the local community. These services are offered both within Accord and off site at our outreach facility.

User experience feedback has been collected over the past 12 months. Collated results would appear to show there is definitive value to offering timely, appropriate and varied bereavement services from a skilled hospice based team. Many of the comments received from people would reinforce the evidence that suggests that support can lessen the effects of bereavement.

Children's Palliative Care in Scotland: the role of the Diana Children's Nurses

Harley D, Porter C, Reid F and Rodger E

Children's Hospice Association Scotland has employed three Diana Children's Nurses (DCNs) since 2014. They are financed through the treasury from funds set up by the government to commemorate the life and work of Diana Princess of Wales. The overarching aims of the roles are given in generic terms, encompassing strategic service development, direct and indirect clinical care, and staff training / support. The three individual roles, DCN West, East and North, focus on the specific remits of oncology and paediatric intensive care, neonates, and the community. They work within, and alongside, the NHS and other statutory and voluntary sectors to support babies, children, and young people (BCYP) with palliative care needs and their families across Scotland. This may be from the point of diagnosis or recognition, at any point through the journey, to end of life and bereavement. Their roles exemplify a holistic approach that recognises all the environments in which BCYP live their lives. More realistic choices for families can be better enabled through exploring changes to practice, whilst developing systems, skills and resources.

CNS model for identifying level of support/intervention needed for care homes

Barker L, Gardner H, Milton L and Stevenson B

Background: Continued support from palliative care specialists is recognised as a way to assist the sustained adoption of new systems and palliative care principles in care homes. (2, 3) Hospice community teams are well placed to support care homes to improve planning and delivery of palliative care. The community palliative nurse specialist team support 28 care homes by providing support to develop processes for identifying deterioration or dying, regular review of palliative care needs, education and specialist advice for individual residents.

Aim: This intervention builds on two previous projects aimed at increasing care home staff knowledge of palliative care practice and procedures, and how they can link together with other palliative care providers’.

Description: The challenges encountered especially with care home staff engagement influenced the importance of shaping any interventions to suit the needs of the individual care home.

An individual Care Home Profile and Algorithm (flowchart) was developed to assist the CNS to determine and agree, with the manager, a Level of CNS Intervention most appropriate and achievable for the individual care home.

Effects of Intervention: Issues such as staff turnover, engagement, and lack of GP resources are an on-going challenge when trying to change palliative care practice and procedures in care homes. Utilising the Care Home Profile and identifying a Level of Intervention has helped the CNS and manager to focus on the priorities for education and change in practice for each care home. Using this model has helped CNS to set achievable goals of intervention and therefore ensure their skills and times are being used appropriately.

Complex Communication Needs: Nursing the patient with Motor Neurone Disease

Alexander J and Kerr F

Case study of a hospice patient combined with a literature review to:

  • establish what communication difficulties can be experienced by nursing staff caring for a patient with MND
  • identify ways in which nurses can improve their knowledge of Augmentative and Alternative Communication (AAC) to better care for this patient group
  • identify assessment tools which can assisted with achieving the most appropriate AAC. 

Poster Abstracts of the month: November

The SPPC Annual Conference in 2016 featured 36 poster displays, sharing work and research underway across Scotland. Each month, this blog focuses on the content of a few of these posters. This month, we focus on:

01. A quality improvement approach to cognitive assessment on hospice admission: could we use the 4AT or short CAM?

Author(s)

Baird L and Spiller J

Prevalence studies show that 15-42% of patients admitted to specialist palliative care inpatient units have delirium. Symptoms of delirium are often subtle and easily missed, or misdiagnosed as fatigue or even depression, and so the use of a screening tool could improve early identification and management of delirium and lead to improved outcomes. Patients admitted to the hospice are often frail and tired; therefore a quick and easy to use method of cognitive assessment is essential. A quality improvement approach was used to improve screening for delirium on admission to a hospice unit. The first cycle determined staff preference between the short CAM and the 4AT. Two further PDSA cycles embedded the 4AT (our preferred tool) into the admission process, establishing it as a usable tool in the hospice setting for up to 92% of admissions. A subsequent cycle showed poor sustainability prompting improvements to staff education and changes to admission documentation. The QI approach highlighted the need to link staff awareness of their use of the screening tool with perceived improvements in treatment of delirium which prompted the creation and implementation of a delirium checklist in the unit, which details the management of delirium, common causes and suggested investigations.

02. Addressing the Great Taboo

Author(s)

Alexander H and Beuken G

This short session was designed to address the taboo of talking about death, dying and bereavement. Although it had not been tried before and there were concerns that some participants may be distressed by the content, the observation results show that this was not a big problem. Participant responses during the session show that the audience knew quite a lot about the topic. This is helpful for peer learning but also because the session was designed as a structured conversation to encourage people to discuss the subject more openly, some mentioned that they planned some actions as a result of attending e.g. making a will or discussing their own funeral wishes with their family. Feedback from the end of the session showed that most people found the session very interesting, although others had mixed reactions, saying it was also challenging. In total 81% of those present requested more training, which indicates a strong desire for more. Some degree of discomfort was expected, however, the session appears to have been very positively received by most participants. There was a small level of not unexpected upset, and a strong desire to learn more.

03. Aiming to achieve realistic bereavement care throughout Greater Glasgow and Clyde

Author(s)

Dolan J, McNeill K, McVey H, Miller J and Neeson E

Introduction: ‘How people die remains in the memory of those who live on’. Facilitating a good death can impact positively on grief and bereavement.

57% of deaths in Greater Glasgow and Clyde occur in acute hospitals, as health care professionals we are in a privileged position to strive for good deaths. Enabling practitioners to be open and equipped to talk about death, dying and bereavement reduces negative experiences.

Aim: To increase practitioners’ confidence and competence when dealing with death, dying and bereavement.

To raise awareness of resources and processes to improve the experience of those affected by death, dying and bereavement in all care settings

Methods: Following a theoretical palliative care module practitioners returned to improve practice through various projects (in ITU, paediatrics, acute surgical receiving , orthopaedics, ENT, tissue viability, respiratory and general medicine), aiming to improve the patients and relatives experience of death, dying and bereavement out with specialist palliative care environment

Projects included:

ž memory making in the form of hand prints, hair and jewellery in organza bags

ž brightest star bereavement boxes

ž death certification checklist

ž raising awareness of resources and processes

ž care after death boxes.

Next steps: Secure funding to embed projects in daily practice, continuing partnership working

04. Approaches to delivering palliative care in nursing care homes in the UK: a systematic scoping review

Author(s)

Finucane A, Hockley J and Kohli-Lynch N

The UK population is ageing with more elderly people living and dying in nursing care homes, making these important settings for palliative care interventions. Multimorbidity and dementia are common and many residents will have high symptom burden and complex care needs. A scoping review was undertaken to map palliative care interventions in nursing homes in the UK. This involved systematically searching six databases from January 2000 to February 2016. 17 articles were identified. These consisted of 7 evaluations studies, 7 descriptive or observational studies and 3 implementation studies. The studies focused on palliative care pathways, advance care planning, staffing issues and healthcare links across settings. The majority of studies were focused on staff views with few focussing on residents’ experiences. However overall there was a paucity of research on palliative care interventions in UK nursing homes. An increased emphasis on developing and evaluating palliative care interventions that are informed by the needs and preferences of resident’s and family’s experiences is recommended.


Poster Abstracts of the month: October

The SPPC Annual Conference in 2015 featured 38 poster displays, sharing work and research underway across Scotland. Each month, this blog focuses on the content of a few of these posters. This month, we focus on

The Role of the Palliative Care Occupational Therapist in the Non-Pharmacological Management of Breathlessness

Author(s): Dorothy Clark; Yvonne Laing; Loretta Comer; Kristen Bryson; Claire Howie; Vicki Lawson; Marianne Macleod

Intractable breathlessness is a common, devastating symptom of advanced cancer causing distress and isolation for patients and families. It is estimated that the prevalence of breathlessness in all cancers is between 19-64%, as death approaches the prevalence rises to 60-80%. It occurs most commonly in lung cancer where it affects up to 75% of people with primary disease of the lung, bronchus and trachea.

The primary focus of Occupational Therapy is on enabling participation in everyday activities to the best of an individual’s ability, irrespective of health or illness.

This poster draws on the experience of the Palliative Occupational Therapy team who work in NHS Fife Acute services Division. It aims to illustrate the impact non-pharmacological management of breathlessness can have on one person’s ability to engage in everyday occupations.

The tide is turning.......

Author(s): Irene Stevens; Fiona Irvine

A collaborative approach to plan, develop and deliver a bespoke training package for Care Home staff to support a new pilot under the Integrated Care Fund Ideas and Innovation scheme, to provide an Enhanced End of Life Care service in a Care Home in NHS Ayrshire and Arran. The rationale for the service was to enable local residents with end of life care needs the opportunity to be cared for as close to home as possible when remaining in their own home was no longer a viable option. It was crucial that staff felt prepared and equipped to support this service hence the need for a robust training programme. Whilst the new service was the basis for the project the benefits were far greater. Participants experienced a wide range of teaching strategies and trained staff had an opportunity for experiential learning with specialist palliative care teams. Two members of the care home staff had previously undertaken a Macmillan funded education programme on palliative and end of life care and are supporting staff to transfer their skills from the classroom to clinical practice in the role of mentors. Undoubtedly, this will be beneficial for the longer term sustainability of the project.

Upskilling generalists in knowledge and skills in palliative care - a celebration of achievements

Author: Josaleen Connolly

The education project in palliative care started July 2011 and will end in October 2015. This project was funded by Macmillan Cancer Support and enabled each participant to undertake a level 9 module in Practical Palliative Care with University West of Scotland and a 5 day placement shadowing various members of specialist palliative care teams in hospital, the hospice and in the community. On completion of the education programme each participant was supported to undertake a small improvement within their own workplace that showed evidence of their new learning and experiences in palliative care being put into practice.

A total of 91 participants were recruited to the education programme and of these 83 people completed it; 71 people initiated small improvement projects related to palliative care and so far 51 of these have been finished.

As the project approaches its end in October, individuals have achievements to be celebrated but continued efforts are needed to update those involved and those who didn’t participate in the current knowledge and skills to care for those in need of palliative care. Therein lies the challenge for the future.

Volunteering: what does it mean to children's hospices?

Author: Dr Ros Scott

This poster reports on children’s hospice data from a research study exploring the influence and impact of volunteers on UK hospices.

Purpose: Using an innovative theoretical model of volunteering impact the purpose of the research was to explore the influence of:

  • Volunteers on key aspects of the service
  • The differing perceptions of different groups on volunteering and its meaning to the hospice.

Method: Three self-administered online questionnaires were developed, one each for trustees, senior staff and volunteers in UK independent hospices.

Findings: Findings indicated that volunteers were considered to be an integral part of the staff team and were seen as important, not only to the care of children and young people, but also to supporting families. Their contribution was inextricably linked with the financial success of the organisation and they were perceived to have a key role in helping to make children’s hospices more accessible. There was a clear commitment to further developing their involvement in the care and support of children, young people and their families.

Conclusions: Volunteers are in essential part of children’s hospices and their influence and impact is significant at all levels of the organisation.

What Key Elements will feature in the Ayrshire Hospice of the Future?

Author(s): Shona Hynd; Kirsty Cornwall

It is acknowledged that our current accommodation at Ayrshire Hospice will not adequately meet our needs and enhance the service we provide into the future. The poster summarises the first stage of an accommodation needs review currently ongoing at Ayrshire Hospice. A person-centred approach was adopted involving patients, families, paid and voluntary staff. The importance of correlating quantitative and qualitative data was recognised and a mixed methodology was adopted using questionnaires face to face interviews and a focus groups. Opinions were sought from in-patients, day services patients, community patients, family members, as well as paid and voluntary staff. The data reinforced the vision of a building that is easily accessible, iconic, welcoming, calming and uplifting. There was a resounding desire for enablement, choice and person centred care with patients controlling their own environment within a single or shared bed space. The next step in this project will be the appointment of a project management team, who will be tasked with providing a full options appraisal. The findings of this, together with the data already collated by the initial scoping stage, will inform the decision making process as to how the Ayrshire Hospice of the future will look and feel.

Winding Road to Enhance Patients Journey

Author: Morag Lyell

Overview of Macmillan funded TCAT project involving lung cancer patients who are for best supportive care. Highlighting aims of the project and quotes from patients prior to TCAT commencing It contains one photograph and 3 logo's and the remaining part is text.

 

Working Together to Promote Meaningful Connection, Hope and Job Satisfaction through the Namaste Care Programme (developed for people with advanced dementia)

Author: Lorna Reid

 

Situation: Despite the increasing incidence, challenge and cost of dementia care, questions remain about how to improve the quality of living and dying for people with end-stage dementia. In response, ACCORD Hospice has been involved in exploring the impact of Namaste Care™ since 2011.

Background: Namaste Care™ is an emerging multi-sensorial model of palliative care designed to improve the quality of life for people with advanced dementia. It has been demonstrated to: facilitate moments of meaningful connection and engagement between people with end stage dementia and others; promote hope among family members; and increase job satisfaction among care staff.

Assessment: As a result of Accords’ project work local interest in Namaste Care™ was high, but knowledge and understanding was low. Therefore an experiential course (with a placement opportunity) was developed by ACCORD Hospice.

Result: The first four day course was delivered in partnership between ACCORD Hospice, The Ayrshire Hospice and Adams House Care Home in 2014. This resulted in two further Namaste Care™ programmes being launched in care homes (with hospice support). Two more courses are planned over the next 12 months (with the support of Adams House in Renfrewshire and Abbotsford Care Home in Ayrshire). The projection for 2016 is: three new care home programmes to launch in Renfrewshire (with educational support from ACCORD Hospice) and two more programmes to launch in Ayrshire (with educational support from The Ayrshire Hospice). Ayrshire sites include a learning disability unit and a mental health care setting for people with dementia.

Poster abstracts of the month: September

The SPPC Annual Conference in 2015 featured 38 poster displays, sharing work and research underway across Scotland. Each month, this blog focuses on the content of a few of these posters. This month, we focus on:

Phase 2 randomised controlled trial of future care planning in patients with advanced heart disease

Author(s)

Kirsty Boyd; Shirley Robertson; Sarah Cudmore; Gill Highet; Lisa Donald; Kristen Haga; Christopher Weir; Scott Murray; Martin Denvir

Integrating cardiology care and palliative care can benefit many patients with advanced heart disease at increased risk of death or hospitalisation. Future care planning provides a framework for discussing a range of palliative care problems with patients and their families. This approach can be introduced at any time during the patient's journey of care and ideally well in advance of end of life care. Future care planning is applicable to a wide range of patients with advanced heart disease and could be delivered systematically by cardiology teams at the time of an unplanned hospital admission, akin to cardiac rehabilitation for myocardial infarction. We have tested this in a successful pilot, controlled trial of an early future care planning intervention consisting of an initial review meeting with the patient plus a family carer by the cardiologist and specialist nurse who offered community follow-up. Liaison with the primary care team promoted early community support and KIS completion. Impact on quality of life was measured using questionnaires and interviews.

Preparing for 'real life' - Reducing Death Anxiety in 3rd year nursing students

Author(s)

Lynn Griffin

Communication around death and dying is challenging. Students are often protected and excluded from these conversations during clinical placement. This reduces the opportunity to learn from other clinicians. Students often report anxiety in how they will have these difficult conversations with patients and their families, once registered. The common theme is one of getting it 'right' and not causing further distress.

The University of Dundee School of Nursing and Health Science has been using a variety of ways to encourage students to talk more openly about death and dying. Innovations showcased by Good Life, Good Death, Good Grief, such as, Before I die Walls, Death Cafes as well as, end of life Clinical Simulations, (underpinned by theoretical modular content) have been used as frameworks/platforms to support and encourage students engagement and learning experience.

Quality Improvement with Nursing Handovers

Author(s)

Laura Johnston; Lesley Ferguson; Elaine McManus

Improving Nursing Handovers in a Hospice In-Patient Unit

Nursing handovers aim to communicate essential patient information between shifts. They have been identified as a communication ‘hotspot’ where inaccurate, missing or untimely information can lead to compromised quality or safety in care.

Handovers in the In-patient unit were long (resource intense), lacked focus, did not closely reflect the patient journey/agenda and produced multiple ‘nurses’ pocket notes’ which had an unknown destination. A Plan, Do, Study, Act (PDSA) methodology was used to improve the handover process.

A handover template was developed to address the problems and then piloted. Clear instructions for how to generate, use and destroy the handover sheet were disseminated to staff prior to implementation.

The template was well received by nurses and encouraged them to be more outcomes-focused and person-centred. The sheet, with its handwritten additions, was physically passed on to the next shift to avoid duplication or inaccurate information and shredded after 24 hours.

Questionnaires were used to gain feedback from nursing staff. Outcomes included: nursing handovers were structured, outcome focused and gave specific attention to patient wishes and goals; reduction of handover time by 50%; patient data in nurses’ pocket notes had been eradicated.

Supporting people with learning disabilities through the palliative care journey- NHS Greater Glasgow and Clyde Learning Disabilities and Palliative Care Pathway

People with Learning Disabilities (PWLD) frequently experience various barriers in accessing effective and appropriate health care, and are often marginalised from regular health services. These barriers, linked with lack of understanding about the palliative care role, add to difficulties accessing palliative care services.

PWLD who have life limiting illness require skilled support from their core team with access to specialist palliative care services being available when needed to support early intervention.

Following a scoping exercise carried out by The Prince and Princess of Wales Hospice in 2011 the award winning project ‘Learning Disabilities and Palliative Care-Building Bridges: Supporting Care’ was established.

As part of the project aim the following objective was set – ‘to develop a care pathway to deliver appropriate and high quality palliative care for PWLD, including guidance referral to specialist palliative care, then to pilot, evaluate and roll out the pathway nationally by 2015’.

The Care Pathway has been developed with multi-professional commitment from both specialist services ensuring holistic care needs of individuals with LD are considered. It is underpinned by evidence based practice and fundamental in promoting the delivery of high quality palliative care for PWLD. The pathway aims to support practitioners across all health and social care settings.

Supportive and Palliative Care Indicators Tool (SPICT): Enabling identification of patients at risk of deteriorating and dying worldwide

Author(s)

Dr Kirsty Boyd

Better care of people dying with one or more advanced conditions depends on primary care teams, hospital specialists and a range of other health and social care professionals making earlier identification part of their routine clinical practice. SPICT highlights readily identifiable general indicators and clinical signs of deteriorating health that mean patients are at risk of deteriorating and dying. Clinicians are prompted to consider assessment of unmet holistic care needs and offer people opportunities to talk about their health problems, the things that matter most to them and their families, and future care planning. SPICT seeks to improve ‘prognostic awareness’ while addressing the ‘prognostic paralysis’ that sometimes means palliative care is only offered when there are few or no other treatment options and the patient is close to dying. Initial and ongoing development is supported by the designated SPICT website and involves a growing network of Scottish, UK and international SPICT collaborators. The EAPC Primary Palliative Care Taskforce recommends SPICT for use across Europe. SPICT is clear, credible and useful in all care settings to promote integrated palliative care.

Talking the Untalkable in Fife

Author(s)

Dr Gordon McLaren; Edward Small; Sheila Matthew; Tracey Blyth; Sarah Nealon  

Aim: A multiagency group was set up in 2011 to encourage a more open approach to death, dying and bereavement in Fife, through raising awareness and encouraging people across society to consider how they can further this agenda themselves.

Method: The group has organised two well attended Fife wide conferences, with participants from different organisations and the public, an all-day drop-in shopping centre event, and a cafe event. Group members produced brief practical information about Wills, Powers of Attorney, Advance Directives, Funeral Planning and death registration. Both conferences drew on the knowledge and skills of participants as members of society encouraging them to have confidence to take forward the agenda themselves.

Results: The most recent conference in November 2014 was very well received. Many attendees indicated they would take forward some actions themselves either at home, in their workplace or in their communities.

Conclusion: The group’s work complements Good Life Good Death Good Grief nationally, providing a local focus to enable wider conversations about openness about death, dying and bereavement in Fife and greater knowledge of practical information. The most recent conference indicated that people felt more able to take forward their own actions in their own communities.

The challenges for volunteering in hospice and palliative care in Europe

Author(s)

Dr Ros Scott

Introduction: Volunteers offer the gift of presence, different skills, experience and time. In some European countries they are and will continue to be essential to providing hospice and palliative care (HPC) services as an integral part of a comprehensive highly professional HPC settings. However, hospice and palliative care faces many challenges and alongside this a new generation of volunteers have different expectations of volunteering and some want to use their skills in different and more meaningful ways.

Based on the work of the EAPC Task Force on Volunteering in HPC, this poster explores some of the challenges for the development volunteering and volunteers in hospice and palliative care in Europe including:

ž The values and principles of HPC and volunteering

ž The influence of culture on volunteering

ž Understanding and recognising the place of volunteers within the multi-professional team

ž Balancing the changing expectations of organisations with those of volunteers

Conclusion: If volunteering is to be developed successfully in the future we must be able to match the changing needs of our patients, their families and our organisations with the changing expectations of the volunteers of tomorrow.

The new West Lothian Community Palliative Care Service: reflections from the first year

Author(s)

Gail Allan; Kate Henriksen; Janice Strachan; Lorna Mackay; Linda Weir; Susan Lawson; Sharron McKay

This poster will describe the first year of the new West Lothian Community Palliative Care Service which was re-launched in Spring 2014. The service is a unique partnership between Marie Curie, Macmillan and NHS Lothian, based in the Macmillan Centre in St John’s Hospital. It will detail the setup of the community service, the current service delivery model, the team who deliver the service, key achievements, challenges and future plans. We will provide feedback from the patients, families, carers and stakeholders. We will also discuss the teams own personal reflections on their first year in post, with a key theme that change has been a positive experience.

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