 |
Welcome to Update, a monthly round-up of news relevant to palliative care in Scotland, brought to you by the Scottish Partnership for Palliative Care. |
Practice |
PELiCaN guidance documents The Paediatric End of Life Care Network (PELiCaN) have published guidance to facilitate the compassionate co-ordination of end of life care for people under 25. Poster Parade: Call for Abstracts Are you involved in an interesting project or in an area of work that you would like to promote and showcase? Why not present your work at the Scottish Partnership for Palliative Care virtual poster exhibition? This is a great opportunity to share your learning and tell others about your work. The call for posters is now open. More information is available here: Poster Parade: Call for Abstracts Sharing current Scottish practice The SPPC Autumn Season 2020 featured an online poster exhibition of 64 posters, sharing work and research underway across Scotland. Each month, our blog focuses on the content of a few of these posters. This month, we focus on:
Sharing your practice The SPPC hosts a blog as a platform for people to share examples of current Scottish palliative care practice that might be of interest to the palliative care community more widely. If you know of work underway that might be relevant for sharing on our website, please email: rebecca@palliativecarescotland.org.uk |
Patient and family perspectives |
Love in the Present Tense Love in the present tense by Nina Praske is a blog and book offering practical advice for people working with young adults being treated for (and potentially dying from) cancer - from a mum’s perspective. |
Academic and Research |
The association between ethnicity, socioeconomic deprivation and receipt of hospital-based palliative care for people with COVID-19: a dual centre service evaluation This study by Sabrina Bajwah et al, published in Palliative Medicine, examine associations between ethnicity and deprivation with timing of palliative care referral for inpatients with COVID-19. The Internet and End of Life DEMOS has worked with the Art of Dying Well to publish The Internet and End of Life, which explores how online forums act as a repository of collective knowledge and build communities of solidarity. |
SPPC News |
Consultation: Every Story's Ending The SPPC is currently seeking views, feedback and comments on Every Story's Ending: Proposals to improve people's experiences of living with serious illness, death, dying and bereavement in Scotland. This draft position paper sets out the major issues affecting care and support of people living with serious illness, dying and bereavement in Scotland and proposes a practical agenda for progress over the next 3-10 years. The consultation will run until Friday 16th July. Please send your response to: Pauline.Ellison@palliativecarescotland.org.uk cc’ing Mark.Hazelwood@palliativecarescotland.org.uk. Given the length of the document, we understand that most people may wish to only read/comment on specific sections of the document. Poster Parade: Call for Abstracts After the success of last year's virtual Poster Parade, this year we are once again running a virtual poster display and competition as part of an Autumn Season of online events to replace our usual Annual Conference. Are you involved in an interesting project or in an area of work that you would like to promote and showcase? Why not present your work at our virtual poster exhibition? This is a great opportunity to share your learning and tell others about your work. The call for posters is now open. More information is available here: Poster Parade: Call for Abstracts To Absent Friends: Small Grants Scheme Launched A small grants fund has been set up to support organisations to put on remembrance events as part of this year's To Absent Friends festival. (1-7 November 2021.) Small grants of up to up to £250 are available. Any organisation with a bank account can apply for a grant. We would encourage applications from charities, community groups, care homes, NHS organisations, small businesses, prisons, arts organisations, schools, education institutions and more. More information is available here: To Absent Friends small grants Save the Date - Launch of Every Story's Ending 8 September 2021, 10am - 11.30am The Scottish Partnership for Palliative Care will host an online event to mark the launch of Every Story's Ending, proposals to improve people's experiences of living with serious illness, death, dying and bereavement in Scotland. We will be joined by Maree Todd MSP, Minister for Public Health, Women's Health and Sport. More details to follow. New member on SPPC Council We are pleased to welcome Gail Allan, Macmillan Lead Nurse Cancer, Palliative Care and Neurological, NHS Western Isles on to the SPPC Council. |
Other News |
Feedback on ReSPECT sought from patients and families Resuscitation Council UK has launched a survey to capture feedback on people’s experiences using version 3 of the of the Recommended Summary Plan for Emergency Care and Treatment (ReSPECT) form. If you have been involved in ReSPECT conversations about what matters to you and to plan your care and treatment in a future emergency, or have been involved in a ReSPECT conversation as a family member or legal welfare proxy/lasting power of attorney, please complete this anonymous survey. Expression of Interest - adult end of life care projects The End of Life Care Integrator is seeking Expressions of Interest (EOIs) for adult end of life care projects. They are keen to work with interested parties across the four nations of the UK. EOIs that focus on the following are particularly encouraged:
Applications are due by midnight on Friday, June 25th, 2021. More information is available here: weblink UK Commission on Bereavement An independent commission has been set up to explore issues and make recommendations on how to better support bereaved people through and beyond Covid-19. Funeral costs for children under 18 The Paediatric End of Life Care Network (PELiCaN) has published guidance on funeral costs in Scotland for children under the age of 18 years. Deaths at Home blog series In their fourth blog in the 'Deaths at Home' series, the Scottish Centre for Administrative Data Research investigate whether the increase in deaths at home has remained despite very few COVID-19 home deaths. |
Events |
Creative ways of working with bereaved children Organised by Child Bereavement UK. Dates: 29 June (10am-1pm), 28th July (10am-1pm). More information is available here: weblink. Practical Guide to Best Practice Symptom Control & Management in End of Life Care Organised by Healthcare Conferences UK. 29 June 2021, online. More information is available here: weblink. When grief goes viralWith Robert Neimeyer and Sherman Lee. A webinar organised by the University of Greenwich. 1 July. More information is available here: weblink. Improving End of Life Care for people with Cardiovascular Disease & Heart Failure Organised by Healthcare Conferences UK. 7 July 2021, online. More information is available here: weblink. After the last breath Organised by Pushing up the Daisies. "We demystify what happens to someone’s body when they die and how to keep it close until you are ready to hand it over." Online, 01/09, 22/09, 13/10, 03/11 at 7pm. More information is available here: weblink. Save the Date - Launch of Every Story's Ending 8 September 2021, 10am - 11.30am. The Scottish Partnership for Palliative Care will host an online event to mark the launch of Every Story's Ending, proposals to improve people's experiences of living with serious illness, death, dying and bereavement in Scotland. We will be joined by Maree Todd MSP, Minister for Public Health, Women's Health and Sport. More information will follow. Democratizing caring, dying and grieving: participation, action, understanding and evaluation.7th International Public Health Palliative Care Conference, 20-23 September 2022, Bruges, Belgium. More information is available here: weblink |
|
If someone forwarded you this email, you can sign up for your own copy here. If you have any questions or comments, you can email us or phone 0131 272 2735.
|
