Scottish Partnership for Palliative Care: Update

Welcome to Update, a monthly round-up of news relevant to palliative care in Scotland, brought to you by the Scottish Partnership for Palliative Care.

Policy

Organ donation

The Human Tissue (Authorisation) (Scotland) Bill has been going through the Parliamentary process since June 2018 and is likely to receive Royal Assent this summer. The law will change to introduce a new system of 'deemed authorisation' for organ and tissue donation for transplantation purposes. This is commonly referred to as an ‘opt out’ system.This means that most adults will be considered to be willing to become a donor unless they opt out or otherwise state that they do not wish to donate. More information is available here: Organ Donation Scotland.

Reform of adult social care support

Cabinet Secretary for Health and Sport, Jeane Freeman, has launched a new programme to support local reform of adult social care support.

Mortuary services standards:draft standards for consultation

The Scottish Government is currently consulting on draft mortuary services standards. The consultation closes on 31 July 2019.

Guidance on Funeral Costs

The Scottish Government has published guidance on funeral costs.

Code of Practice for Funeral Directors

The Scottish Government is currently consulting on a draft Code of Practice for Funeral Directors. The closing date is 20 September 2019.

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Practice

Sharing Current Scottish Practice

Each month our blog focuses on a few of the posters displayed at previous SPPC Annual Conferences. This month we look at six posters from the 2018 conference:

Sharing your practice

The SPPC hosts a 'sharing current Scottish practice' blog as a platform for people to share examples of current Scottish palliative care practice that might be of interest to the palliative care community more widely. If you know of work underway that might be relevant for sharing on our website, please get in touch

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Academic and Research

Dying in the Margins

A new ESRC-funded project Dying in the Margins will investigate how socio economic deprivation affects people's end of life experiences and ability to die at home. The study is being undertaken by Dr Naomi Richards of the Glasgow University End of Life Studies Group, Professor Merryn Gott from the University of Auckland, New Zealand and Dr Emma Carduff, Research Lead at the Marie Curie Hospice in Glasgow.

Research report: Death in people aged 75 years and older in England 2017

The National End of Life Intelligence Network has released a new report, entitled Death in people aged 75 years and older in England in 2017.

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SPPC Annual Conference 2019: Provocation, innovation and eternal truths

Wednesday 18th September 2019, Royal College of Physicians Edinburgh

The quest to enable people to live well with serious illness and to die as they would wish is being reshaped by social, demographic and financial change. This conference will engage delegates in considering these changes and explore ways in which as organisations and individuals we might respond. More information and booking is available here: SPPC Annual Conference

Confirmed speakers include:

Tony Walter

Tony Walter is a sociologist who writes, lectures and consults on death and society, and Emeritus Professor at the University of Bath’s Centre for Death & Society.

Heather Richardson

Heather Richardson works as one of the Joint CEOs of St Christopher’s Hospice, London.

Jake Garber

Jake Garber is a service designer and systems thinker who has been exploring cultures and systems of support around death and dying for over a decade.

Lynne Carmichael

Lynne led and developed the implementation of the CSNAT (Carers Support Needs Assessment Tool) to ensure a consistent approach to carers assessment. Her current role is Head of Clinical Governance and Practice Development at the Ayrshire Hospice.

Gail Ewing

Dr Gail Ewing BSc PhD is a Senior Research Associate at the Centre for Family Research, University of Cambridge.

Ewan Kelly

Ewan has worked in healthcare chaplaincy as a practitioner, educator, researcher and as a strategic leader with NHS Education for Scotland. He was formerly a senior lecturer in pastoral theology for many years at the University of Edinburgh and latterly co-founded the European Research Institute for Chaplains in Healthcare based at the University of Leuven, Belgium.

Michael West

Professor Michael West is Senior Visiting Fellow at the King’s Fund, London and Professor of Organizational Psychology at Lancaster University Management School. He is Visiting Professor at University College, Dublin and Emeritus Professor at Aston University.

Call for Posters

Are you involved in an interesting project or in an area of work that you would like to discuss with or show to others in Scotland with an interest in palliative care? Why not apply to display a poster of your work at this year's SPPC Annual Conference? Find out more here: Call for Posters.

Book a place

For more information and to book a place, visit the SPPC website. There is a discount for anyone employed by a SPPC member organisation.

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Death on the Fringe

This August the Scottish Partnership for Palliative Care and Good Life, Good Death, Good Grief bring you the sixth edition of Death on the Fringe. With 31 shows lined up and more to come, this could be the biggest Death on the Fringe yet...

A highlight will be the Death on the Fringe Lecture Series, where we'll explore portrayal of death in the media. Cinema and TV love to use death as a dramatic device, but is death on screen anything like real dying? Our three speakers will explore this from different angles:

We're all going to die! Fun at the End with Dr Kathryn Mannix

After 30 years as a palliative care doctor, Kathryn Mannix wants us to think more about dying before we reach our death beds. Come and ponder: we’ll certainly laugh. We’ll possibly cry. We’ll definitely think. And there may be zombies…

5 August, 4pm, St John's Episcopal Church, Princes Street, Edinburgh. More information is available here.

Barbara Peters: The CSI Effect

Mortuary technician, Barbara Peters, will explain what actually happens in a forensic post mortem. She will compare the bad examples of television with the real-life workings of a mortuary and dispel any myths about the profession.

12 August, 4pm, St John's Episcopal Church, Princes Street, Edinburgh. More information is available here.

Dr Ruth Penfold Mounce: The Secrets of a Successful Posthumous Celebrity Career

Death is not the end for many celebrities. Ruth Penfold-Mounce, Senior Lecturer in Criminology at University of York, explores how death can actually be a positive move for celebrities and that many can have a thriving (and lucrative) posthumous career. Drawing on case studies including Marilyn Monroe, Elvis Presley and Robin Williams she considers the secrets to a successful career after death.

19 August, 4pm, St John's Episcopal Church, Princes Street, Edinburgh. More information is available here.

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Other News

My Support My Choice: User Experiences of Self-Directed Support in Scotland

Self Directed Support Scotland and the Health and Social Care Alliance Scotland (the ALLIANCE) are seeking people with experience of being assessed for and managing Self-directed Support to take part one-to-one, face-to-face interviews. This is part of a project called ‘My Support My Choice: user experiences of Self-directed Support in Scotland’. For more information, call 0800 1701 321 or email Hannah.tweed@alliance-scotland.org.uk or Dianne@sdsscotland.org.uk

National Childhood Bereavement Services Co-ordinator

The Scottish Government recently advertised the post of National Childhood Bereavement Services Co-ordinator to advise on steps that can be taken to drive forward improvements in bereavement services and support for children and young people across Scotland. This post will be based within the Centre for Youth & Criminal Justice (CYCJ) at the University of Strathclyde, Glasgow.

In the media

BBC News: End-of-life pain relief phone app trialled at Melrose care unit

Falkirk Herald: ‘No threat’ to Strathcarron funding says NHS Lanarkshire

The Herald: Devastating report reveals crisis in Scotland's care sector

The Scotsman: Care sector is in a ‘twilight zone’ and facing collapse

The Times: UK in top three nations for rocketing opioid use, while America cuts down

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Courses and Events

Scottish Partnership for Palliative Care Annual Conference 2019

18 September 2019, Edinburgh. More information is available here: weblink.

Death on the Fringe

Organised by Good Life, Good Death, Good Grief and the Scottish Partnership for Palliative Care. Various dates in August, Edinburgh. More information is available here: weblink.

Proving and Improving: Developing effective assessment and evaluation in bereavement services

Organised by the Bereavement Evaluation Forum and the Association of Bereavement Service Coordinators. 23 July, Leeds.

End of Life and People with Intellectual Disabilities: How to manage the discussion

Organised by the International Association for the Scientific Study of Intellectual and Developmental Disability (IASSIDD). 5 August 2019, Glasgow. More information is available here: weblink. (please scroll down to workshop 8)

We're all going to die! Fun at the End with Dr Kathryn Mannix

Part of Death on the Fringe, organised by Good Life, Good Death, Good Grief and the Scottish Partnership for Palliative Care. 5 August, Edinburgh. More information is available here.

Advanced Communication Skills

Organised by St Margaret of Scotland Hospice. Clydebank, 9 and 16 August 2019. Email Margaret Donnelly for more information.

Barbara Peters: The CSI Effect

Part of Death on the Fringe, organised by Good Life, Good Death, Good Grief and the Scottish Partnership for Palliative Care.12 August, Edinburgh. More information is available here.

Dr Ruth Penfold Mounce: The Secrets of a Successful Posthumous Celebrity Career

Part of Death on the Fringe, organised by Good Life, Good Death, Good Grief and the Scottish Partnership for Palliative Care.19 August, Edinburgh. More information is available here.

Introduction to Palliative Care

Organised by St Margaret of Scotland Hospice. Clydebank. 22 & 29 August and 5 & 12 September 2019. Email Margaret Donnelly for more information.

Caring Community Seminar

Organised by Accord Hospice. Paisley, 8 October 2019. More information is available here: weblink.

Future directions of hospice care: IPU or ITU?

Organised by Marie Curie and the Royal Society of Medicine. London, 14 October 2019. More information is available here: weblink.

Building and sustaining compassionate communities: The role of the Churches in supporting people with end of life matters

Organised by Faith in Older People and the Scottish Partnership for Palliative Care. Wednesday 27 November, Edinburgh. More details will be available soon.

Bereavement Care - Past Present and Future

Organised by Cruse Bereavement Care. Celebrating 60 years of Cruse with experts on the topic of grief and bereavement. 4 & 5 July 2019, Birmingham. More information is available here: weblink.

Community Palliative Care; Wholly Holistic, Or More To Do?

Organised by NHS Tayside. 28 August 2019, Dundee. More information is available here: weblink.

British Lymphology Society Conference

7th & 8th October, Staffordshire. More information is available here: weblink.

Compassionate Communities in Action: Reclaiming ageing, dying and grieving.

6th Public Health Palliative Care International Conference. 13-16 October, Blue Mountains, New South Wales, Australia. More information is available here: weblink.

Reducing & Managing Pressure Ulcers at the End of Life: Fourth National Conference

Organised by Healthcare Conferences UK. 14 October 2019, London. More information is available here: weblink.

Clinically Assisted Nutrition and Hydration Supporting Decision Making: Ensuring Best Practice

Organised by Healthcare Conferences UK. 14 October 2019, London. More information is available here: weblink.

Starting with the end in mind; A realistic approach to bereavement and resilience

Organised by NES. 11 November 2019, Edinburgh. More information is available here: weblink.

National Care Home Conference, Exhibition & Awards 18

Organised by Scottish Care. 16 November, Glasgow. More information is available here: weblink.

St Columba's Hospice/Queen Margaret University programmes of study

St Columba’s Hospice in collaboration with Queen Margaret University provide two programmes of study:

  • The Graduate Certificate in Palliative Care
  • The MSc Person-centred Practice (Palliative Care)
  • Postgraduate Diploma Person-centred Practice (Palliative Care – Advancing Clinical Practice)

Further information about the modules which are running 2019/20 is available here: weblink. If you would like to discuss your learning need/mode of study please contact: Janice Logan. If you have any difficulties applying via the Queen Margaret University website, please contact Sue Thorburn on 0131 551 7710.

St Margaret of Scotland Hospice courses

A full list of courses delivered by St Margaret of Scotland Hospice is available on their website.

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