This section of the website provides an update (as at 13th August 2013) on the implementation of the Scottish Government’s action plan on palliative and end of life care Living and Dying Well. It gives information about work at national level, but does not cover all the work going on at local level across Scotland.
Chair of the national Advisory Group and National Clinical Lead for Palliative and End of Life Care, Elizabeth Ireland, leaves these roles in August 2013. Scottish Government is considering future arrangements and also the links between the National Advisory Group and other work streams (eg Route Map to the 2020 Vision).
The STARS online training module for consultants in now available
NES has developed a DNACPR module for Foundation Years 1 and 2 as part of the Doctors online training system (DOTS).
A new measure to support the audit of the implementation of the national DNACPR policy has been published by NHS HIS.
'A national overview report on palliative and end of life care, March 2012' provides an analysis of the NHS Board update reports (Oct 2011) and is available on the Scottish Government’s website.
NHS HIS have published Palliative and End of Life Care indicators on their website.
This is a Scotland-wide collaborative project to review and update palliative care clinical guidelines. Draft guidelines have been drafted for all but two of 30 topics. Most topics have been through internal review and are at various points in the external review process. SHOW are in the process of creating a web space to host the finished guidelines. Discussions about the process for NHS Board Drug and Therapeutic Committee adoption are ongoing.
Good Life, Good Death, Good Grief is an alliance of individuals and organisations working to make Scotland a place where people can be open about death, dying and bereavement. Over 700 organisations and individuals have joined to date. An awareness week ran in May 2013, which involved over 20 events and 33 Before I Die walls. A stakeholders’ event for around 100 members will be organised for November 2013. A range of practical leaflets are available. A film about living with advanced disease has been produced. A small grants scheme drew an excellent response and a further call for applications will be run later in the year.
The Care Inspectorate has identified information it will collect via its annual returns which will inform improvement of palliative care in care homes.
The Joint Improvement Team and SPPC have published an e-bulletin focused on palliative and end of life care for the local authority/NHS Board/3rd sector partnerships engaged in Reshaping Care for Older People.
The Partnership, Care Inspectorate, Scottish Care and JIT have produced a web-based resource to enable care home providers to access; evidence, policy, good practice, resources and education.
The SPPC is providing palliative care representation on a new government strategic taskforce looking at residential care.
The Palliative Care Zone on NHS Inform is live and aims to provide information to members of the public about palliative and end of life care. The SPPC is currently managing the review and update of NHS Inform Palliative Care Zone content. Please get in touch with feedback on any aspect of the palliative care zone content (including suggestions for new content).
Together for Short Lives has established a UK-wide task force on transition.
A Framework for Palliative Care for Children and Young People (produced by SCYPPEx) has been published by the Scottish Government and was formally formal launched in March 2013.
SCYPPEx is now part of the SPPC.
A CEL on hospice commissioning was published in May 2012: CEL 12 (2012) 'A Partnership for Better Palliative and End of Life Care: Creating a new relationship between Independent Adult Hospices and NHS Boards in Scotland'.
A new Hospice Quality Improvement Forum has been established, comprising Scottish Hospices and host NHS Boards. The group has met twice so far and a further meeting is scheduled for September. Initial work is exploring benchmarking of quality and costs.
The SPPC is working with the Scottish Patient Safety Programme (HIS), and a number of hospitals in NHS Boards to develop a structured response (SSR) to patients in hospitals whose condition is deteriorating and whose recovery is uncertain. It has been decided not to further pursue the use of the AMBER Care Bundle in Scotland. The SSR will be presented and discussed at the SPSP Learning Event 10 at the end of August with the opportunity for NHS Boards to consider its adoption for local use.