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Welcome to Update, a monthly round-up of news relevant to palliative care in Scotland, brought to you by the Scottish Partnership for Palliative Care. |
Policy |
Chief Medical Officer Annual Report 2022/23 The Chief Medical Officer (CMO) has published his annual report, Doing the right thing: Chief Medical Officer annual report 2022 to 2023. A National Framework for Person-Centred Wellbeing and Spiritual Care The Scottish Government has published Discovering meaning, purpose and hope through person centred wellbeing and spiritual care: A National Framework Scottish Government Dementia Strategy The Scottish Government have published a new 10-year dementia strategy Dementia in Scotland: Everyone's Story. Scottish Government Cancer Strategy The Scottish Government have published a new 10-year Cancer Strategy and an associated Cancer Action Plan for Scotland (2023-2026). Parliamentary Questions Miles Briggs MSP lodged the following question on 14 Jun 2023: (question reference: S6W-19114) To ask the Scottish Government when it will publish its new strategy for palliative care. Answered by Jenni Minto on 22 June 2023: The Scottish Government has established a Strategy Steering Group to oversee the development and delivery of a Palliative and End of Life Care Strategy, and aims to publish a draft strategy for consultation by the end of 2023. A Human Rights Bill for Scotland: Consultation and Public Consultation Events The Scottish Government has recently published its consultation on a new Human Rights Bill for Scotland. The consultation closes on 5 October 2023 and can be found on the Scottish Government website and responded to on the Citizen Space hub. Dates and locations for a series of regional roadshow events hosted across Scotland as well as additional virtual events can now be found on the Citizen Space hub, which contains links to the events on Eventbrite. SG have tweeted about the events here. Questions about the events or the consultation and accessibility can be directed to HumanRightsOffice@gov.scot. |
Practice |
SIGN 167: Guideline on Care of Deteriorating Patients Healthcare Improvement Scotland have published SIGN 167: Care of Deteriorating Patients. This guideline focuses on the management of acute clinical deterioration in non-pregnant adult patients within primary, secondary and community care settings. The guideline replaces SIGN 139: Care of deteriorating patients. DNACPR: top tips and dispelling myths Macmillan and the Scottish Ambulance Service have produced a poster aiming to clearly define the main things to do and not to do when a patient has or requires a DNACPR form to be completed or upheld. You can read more about the Macmillan/Scottish Ambulance Service Palliative and End of Life Care project and view the poster here. Sharing current Scottish Practice The SPPC Autumn Season 2022 featured an online poster exhibition of 55 posters, sharing work and research underway across Scotland. Each month, our blog focuses on the content of a few of these posters. This month, we focus on:
The SPPC blog is a space to share practice currently underway in Scotland. If you have practice you'd like to share, please get in touch. |
Academic and Research |
Open Call - Marie Curie Research Grants Scheme Call 12 of the Marie Curie Research Grants Scheme is now open, inviting proposals for research that can help understand and critically address barriers to equitable end of life experience. The closing date for expressions of interest is 24 July 2023. |
Public and Patient Perspectives |
The Ideal and the Real: Patient and Bereaved Family Caregiver Perspectives on the Significance of Place of Death A new qualitative study by a team from the University of Nottingham School of Health Sciences explores patient and bereaved family caregiver perspectives on experiences of dying in a variety of settings and on the significance of place of death as a major part of a "good death". A focus of the study was to compare widespread assumptions about public preferences and the idealisation of home with participants' real-world experiences. The study's findings suggest that public priorities are not always reflected in current policy. Read the full article here. Online Public Information about Advance Care Planning: An Evaluation of UK and International Websites The Primary Palliative Care Research Group at the University of Edinburgh have published an evaluation of online, public facing information about advance/anticipatory care planning from UK and international websites as part of a research project funded by Marie Curie. The paper concluded that some websites met accepted standards required to facilitate understanding and public engagement in ACP. Others could be improved significantly. Website providers have important roles and responsibilities in increasing people's understanding of their health conditions, future care options and ability to take an active role in planning for their health and care. |
Bereavement |
Report of the Scottish Bereavement Summit The Scottish Bereavement Summit Final Report has been published. The report draws attention to the difficulties faced by people who are grieving in Scotland, and sets out recommendations of how to address some of the key issues. Access to the full report, a summary version, and more information about the Bereavement Summit, is available here: Scottish Bereavement Summit Report launch |
SPPC News |
SPPC Annual Conference 2023 The Scottish Partnership for Palliative Care Annual Conference will take place on Wednesday 22 November 2023 at the Royal College of Physicians of Edinburgh, 9 Queen Street, Edinburgh, EH2 1JQ. More details will follow. Call for Posters Are you involved in an interesting project or in an area of work that you would like to discuss with or show to other conference attendees? Why not present your work in the poster exhibition which is an essential part of learning and sharing best practice at the Scottish Partnership for Palliative Care Annual Conference. If you are at all interested in presenting a poster please contact Pauline@palliativecarescotland.org.uk for a proposal form for completion. The closing date for submissions is Friday 27 October 2023. Call for Exhibition Stands / Publication Displays Once again this year there will be an opportunity to exhibit at the Scottish Partnership for Palliative Care Annual Conference. The exhibitor area at the conference provides generous space for exhibitions and displays with direct access to the catering area, seating, posters and breakout rooms. If you are interested in bringing along a display stands, please contact Pauline Ellison for a proposal form for completion. Pauline@palliativecarescotland.org.uk The closing date for submissions is Friday 27 October 2023. Help to Inform SPPC’s Response to the Scottish COVID-19 Inquiry SPPC is developing a collective submission to the Scottish COVID-19 Inquiry, focussing on palliative and end of life care. The Inquiry is keen to hear people’s responses to 3 key questions:
SPPC is interested in your response to these questions to guide and inform a collective submission. Responses can be sent to mark@palliativecarescotland.org.uk . Responses to SPPC will be treated as confidential. Alternatively (or additionally) you can submit a response directly to the Inquiry here. Scottish Compassionate Communities Networking Event This online networking event, organised by Truacanta: Scotland's Compassionate Commuity Network, is for anyone involved in or interested in learning more about compassionate community activity in Scotland. There will be the chance to share your experiences, reflections, challenges and opportunities with each other. We will also be launching the final evaluation of the Truacanta Project which ran from 2019 – 2023; we’ll share key learnings, members of the Truacanta communities will share their own reflections on being part of the project, and attendees will have a chance to ask questions. Book a free place here: Truacanta Networking Event or email caroline@palliativecarescotland.org.uk for more information. To Absent Friends Festival - Small Grants Available A small grants fund has been set up to support organisations to hold remembrance events as part of this year's To Absent Friends festival (1-7 November 2023.) Two types of small grants (of up to £300) are available: Community grants: These are for organisations and communities who want to plan private remembrance events at which their community can come together (in person or online) to share memories, stories and solace. Public grants: These are for organisations who want to organise an interactive public event such as a concert, exhibition or installation, freely open to members of the public. The deadline for applications is 28 August 2023. More information is available here: To Absent Friends Small Grants Photo Competition: Capture the Essence of a Memory The Essence of a Memory photography competition invites participants to submit a photo and write up to fifty words which together evoke a story or memory of someone important in their life who has died. Winning entries will form part of a new exhibition to mark the 10th anniversary of the To Absent Friends Festival. The new exhibition will be launched at an evening reception in the Scottish Storytelling Centre on 1 November. The winner of the adult category will receive £500, and the winner of the children's category will receive £50. The competition is open to people residing in Scotland. Find out more about the competition and how to enter here: Essence of a Memory Competition Art Commission The Scottish Partnership for Palliative Care is looking to commission an artist to envision and create an interactive art installation to mark the 10th Anniversary of the To Absent Friends festival. This commission is for an artist or collective resident in the UK. Relevant experience working with public interactive art installations is desirable, but a track record of delivering other types of installation exhibitions plus a good idea and plan for your first public interactive installation will also be considered. Applications should be submitted to samara@palliativecarescotland.org.uk by 12 noon on Monday 7 August 2023. More information including a detailed project brief is available here: To Absent Friends 10th Anniversary Art Commission |
Other News |
Funeral Experiences Research: Participants wanted A researcher at the University of Dundee is exploring the impact of funerals on people’s finances and wellbeing. Responses are sought from individuals who have organised a funeral for someone over the age of 18 in the last five years (but not more recently than six months ago), organised the funeral in England, Scotland or Wales, and are aged over 18. The questionnaire will take approximately 15 minutes to complete. The link to the survey is here. If you have any questions, please contact Ruth Bickerton at 080013066@dundee.ac.uk. Macmillan's Next Chapter - Strategy 2030 Macmillan Cancer Support are seeking the views of stakeholders to inform their plans to meet the needs of people living with and affected by cancer, including those approaching the end of their lives. This short survey asks you about your concerns, hopes and priorities for improvement www.macmillan.org.uk/transforming-macmillan-together. The closing date is 14 July 2023. Macmillan education and training for the cancer workforce Introduction to Advance and Anticipatory Care Planning (ACP) is a free e-learning course on the Macmillan Learning Hub. It consists of six modules that provide the learner with an introduction on why ACP is important, an overview of ACP across the four nations, the benefits of ACP, the ACP process which includes identifying trigger points throughout a cancer journey for important conversations and some communication skills that support this process. Professionals can access this resource on the Learning Hub here: https://macmillan.fuseuniversal.com/communities/5094/contents/277215 or use this link to register for an account: Learning and development | Healthcare professionals | Macmillan Cancer Support |
Courses and Events |
Save the Date - SPPC Conference 2023 The next Scottish Partnership for Palliative Care Annual Conference will take place on 22 November 2023. Namaste Care Online Training Course Dates for 2023Organised by Prince & Princess of Wales Hospice and Ayrshire Hospice. 3 October and 7 November 2023, online. More information is available here. 2023 Global Ageing Network Biennial Conference Organised in partnership with Scottish Care and the National Care Forum. 7-8 September 2023, Glasgow. More information and early-bird registration is available at the conference website. The APM & PCRS Research Course (Autumn 2023): Understanding and Applying Research Methods in Practice Developed by the APM Research & Ethics Committee and the PCRS Executive Committee. 21 and 28 September online (MS Teams), 12 October in-person (Leeds). Find out more and register here, and contact admin@pcrs.org.uk with any questions. Strathcarron Hospice - Frailty and Rehabilitation in Palliative Care Conference Organised by Strathcarron Hospice. A Human Rights based approach to Palliative Care: Towards Solutions for Public Health Palliative Care Save the Date - The Grief We Carry Organised by NHS Education Scotland, the 4th annual Bereavement Education Conference, will take place as an all-day online event on 28 November 2023. More details to follow. |
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