Scottish Partnership for Palliative Care: Update

Welcome to Update, a monthly round-up of news relevant to palliative care in Scotland, brought to you by the Scottish Partnership for Palliative Care.

Policy

Public Health Priorities for Scotland

The Scottish Government and COSLA have published Public Health Priorities for Scotland.

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Practice

Poster abstracts of the month

The SPPC Annual Conference in 2017 featured 46 poster displays, sharing work and research underway across Scotland. Each month, the SPPC blog focuses on the content of a few of these posters. This month, we focus on six of these:

A full list of posters from the 2017 SPPC Annual Conference is available here: Poster displays 2017.

Sharing your practice

The SPPC hosts a 'sharing current Scottish practice' blog as a platform for people to share examples of current Scottish palliative care practice that might be of interest to the palliative care community more widely. If you know of work underway that might be relevant for sharing on our website, please get in touch.

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Public and Patient Experience

Missed Opportunities Report

Macmillan Cancer Support have published Missed Opportunities, a report exploring experiences of and attitudes towards Anticipatory Care Planning.

The supported carer project

The University of Strathclyde digital health team has launched a survey to gather information to help improve understanding of how technology can help carers stay well and care for others.

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Academic and Research

Call for abstracts

The EAPC Reference Group on Public Health and Palliative Care and EAPC RN are organising an International Seminar: Public Health Research in Palliative Care: Shifting the Paradigm on 25-26 October 2018 in Brussels. The closing date for abstract submissions is 25 August.

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SPPC News

Death on the Fringe

We are pleased to be hosting the 5th Annual Death on the Fringe lecture series in association with Just Festival. All the lectures take place at St John's Church, Princes Street, Edinburgh at 6pm.

9 Aug - Eddie Small: The Surprising History of the Scottish Funeral

16 Aug - Awdri Doyle: A Day in the Life of a Funeral Director

23 Aug - Hilary Peppiette: Companions at the End of Life - The Work of a Death Doula

We are also curating a series of shows that deal with issues related to death, dying and bereavement, including Fringe favourite Pip Utton's solo show about Alzheimer's, called And Before I Forget I Love You, I Love You, and Vicar of Dibley writer Paul Mayhew-Archer's show Incurable Optimist, about his Parkinson's diagnosis.

Tickets for all shows are available now. Full listings are on the Death on the Fringe website, with more to follow.

Small Grants Available: To Absent Friend festival

We are again running a small grants scheme to support organisations to participate in the To Absent Friends festival of storytelling and remembrance, which takes place between 1 - 7 November.The festival gives people across Scotland an excuse to remember, to tell stories, to celebrate and to reminisce about people they love who have died, reviving lost traditions and creating new ones.

Grants are available for up to £250, and we encourage creative and innovative ideas that are appropriate to local groups and communities. We are particularly keen to support small organisations to undertake local activities that provide public opportunities for storytelling and/or remembrance of people who have died.

Good Death Week

A very successful Good Death Week took place between 14 - 20 May.

Events took place across Scotland, from information sessions in Forres, to readings at the Scottish Poetry Library, to storytelling, music and poetry in East Kilbride. There was a very busy Twitter Chat with the Health and Social Care Academy and the themes also featured on Radio Scotland.

We were also very lucky to have some guest bloggers, sharing their expertise on how people can be helped to have a good death in different settings:

A Good Death at Home by death doula Hilary Peppiette

A Good Death in Hospital by Deans Buchanan, NHS Tayside

A Good Death in a Hospice by Kenny Steele, Highland Hospice

A Good Death in a Care Home by Alison McPherson, Manager of Hillside View, Paisley

What is a “Good Death?”, a personal reflection by author Jane Duncan Rogers.

Scottish Compassionate Communities Network

Feedback from the recent Everyday Compassion Conference indicated that many people would like to get involved in practical work to build compassion in their own community. We are therefore collecting contact details of people who would be interested in working with others in their local area to create a Compassionate Community. We can then share contact details, enabling people to get in touch with other like-minded people in their own area.

Eventually, we hope to build on this to establish a Scottish Compassionate Communities Network, where learning, ideas and inspiration can be shared across Scotland. We will also explore what Good Life, Good Death, Good Grief might be able to do to provide further, practical support to those wishing to create compassionate communities. If you would like to be involved in local work, or would like to be involved in the new Scottish Compassionate Communities Network, please complete this online form.

Everyday Compassion Conference - presentations available

The Everyday Compassion conference in April saw over 200 delegates gather to discuss ways to encourage more open and supportive attitudes and behaviours towards death, dying and bereavement in Scotland. Audio recordings of plenary speakers are now available on our website.

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SPPC Annual Conference - speakers announced

The Sense of an Ending: stories, meanings and understanding.

Scottish Partnership for Palliative Care Annual Conference 2018
Wednesday 28 November, Royal College of Physicians Edinburgh

Bookings are now open for Scotland’s premiere event for anyone involved in the care and support of people reaching the end of life.

Featuring a mix of high quality speakers, extensive poster display, Arts Space and delegate interaction the SPPC Annual Conference will provide delegates with:

  • an opportunity for learning relevant to practice and workplace
  • a chance to network, to share information and good practice
  • challenging perspectives and energising inspiration

Speakers confirmed so far include:

  • Christian Busch, Hospital Chaplain, Rigshospitalet, Copenhagen.
  • Paul Gray, Director General for Health and Social Care for the Scottish Government and Chief Executive of NHSScotland
  • Deans Buchanan, Consultant in Palliative Medicine, Ninewells Hospital, Dundee
  • Donald MacAskill, Chief Executive, Scottish Care
  • Paul Baughan, Clinical Lead for Palliative and End of Life Care, Healthcare Improvement Scotland

The conference costs £145, with a reduced rate for £105 for employees of member organisations. For more information and to book a place, visit the SPPC Conference webpage.

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Other News

New report: 'The Experience of the Experienced'

Scottish Care has published The Experience of the Experienced, a new report exploring the employment journeys of experienced and older individuals working in nursing home, care home, care at home and housing support organisations.

Palliative Care Guidelines Impact Survey

Healthcare Improvement Scotland are seeking feedback on the use of the Palliative Care Guidelines.

The Dundas Medal

The closing date for the second annual Dundas Medal, in honour of Dr Bertie Dundas, is 4 July 2018. The award is open to individuals or teams (medical, nursing or paramedical) in the UK working to improve the provision of palliative care for patients when they are in hospital.

In the media

The SPPC does not undertake a comprehensive media monitoring service. Listed below are some of the stories relevant to palliative and end of life care that have appeared in the media in recent weeks.

The Scotsman: Charity urges more discussion around end of life taboo

The Times: The great NHS cover‑up: opiate syringes may have killed thousands

The Times: End-of-life care must be protected

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And Finally...

In each edition of Update we try to end with something a little bit thought-provoking or different... In this article, Nitin Ahuja explores the architecture of spaces in which people die.

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Courses and Events

SPPC Annual Conference 2018: The Sense of an Ending: stories, meanings and understanding

Bookings are now open for the Scottish Partnership for Palliative Care Annual Conference, which will take place on Wednesday 28 November 2018 at the Royal College of Physicians of Edinburgh. More information, including confirmed speakers, is available here: weblink

Darkness & Depression…. when darkness falls and depression descends

St Margaret of Scotland Hospice Lunch & Learn Session. 29 June, 12.30pm. To book a place, please contact Margaret Donnelly.

Effective Non-Medical Prescribing in End of Life Care

Organised by Health Care Conference UK. 16 July 2018, London. More information is available here: weblink.

Open information session at the Marie Curie Hospice, Edinburgh

All are welcome to visit the Marie Curie Hospice, Edinburgh, to learn more about the services offered and meet some of the Clinical Team. Afternoon sessions are from 2pm to 4pm and are on the following dates in 2018: 17th July, 21st September and 8th November. For further information and to book a place, please contact Barbara McRobbie on 0131 470 2201

Death on the Fringe Lecture series

Organised by Good Life, Good Death, Good Grief and the Scottish Partnership for Palliative Care, in association with Just Festival.

The Surprising History of the Scottish Funeral

Eddie Small, 9 August, 6pm, St. John's Church, Princes Street, Edinburgh

A Day in the Life of a Funeral Director

Awdri Doyle, 6pm, 16 August, 6pm, St. John's Church, Princes Street, Edinburgh

Companions at the End of Life - The Work of a Death Doula

Hilary Peppiette, 6pm, 23 Aug, 6pm, St. John's Church, Princes Street, Edinburgh

Cross Party Group in the Scottish Parliament on Palliative and End of Life Care

Human Rights and Palliative Care, 5 September 2018, Edinburgh. More information is available here: weblink.

HOLD THE DATE – Conference on Palliative Care in Scotland’s Prisons

10 September 2018, Central Hall, Edinburgh. With the support of Macmillan, Scottish Prison Service, NHS Scotland & SPPC. Details to follow.

Oncology: Challenges and changing outcomes

21 September 2018, Organised by RCPE. More information is available here: weblink.

Challenge or Conform: Finding Consensus in an Evolving Specialty

Organised by Strathcarron Hospice. 27 and 28 September 2018, Edinburgh. More information is available here: weblink.

Palliative Care: Shifting the Paradigm

International Seminar of EAPC RN and the EAPC Reference Group on Public Health and Palliative Care. 25 - 26 October 2018, Brussels. More information is available here: weblink.

Save the date: The Malcolm Goldsmith Lecture 2018: Rev Canon Dr Joseph John Morrow

Organised by Faith in Older People, 8 November 2018.

National Conference: Diversity and Inclusion in Bereavement Support

Organised by Child Bereavement UK. 15 November 2018, Manchester. More information is available here: weblink.

St Margaret of Scotland Hospice courses

A full list of courses delivered by St Margaret of Scotland Hospice is available on their website.

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