Scottish Partnership for Palliative Care: Update

Welcome to Update, a monthly roundup of news relevant to palliative care in Scotland, brought to you by the Scottish Partnership for Palliative Care.

Policy

Strategic Framework for Action

The Scottish Government has published a new Strategic Framework for Action for Palliative and End of Life Care. The Framework, an Executive Summary and a Supporting Evidence Summary can be downloaded here: weblink

Guidance to Integration Authorities on Strategic Commissioning Plans

Scottish Government has issued guidance on the production and content of strategic commissioning plans which must be produced by integration authorities. One outcome indicator pertains to end of life. See the guidance here: weblink

Improvement Collaborative (which includes a focus on ACP)

Living Well in Communities is a collaboration which aims to support people to spend more time living at home or in a homely setting. Improvement activity will focus on five key areas which have been identified as areas where the pace and scale of improvement can be increased if additional improvement support is provided:

  • frailty pathways and falls management and prevention
  • anticipatory care planning
  • improving links between the housing sector, health and social care
  • elements of delayed discharge, and
  • pathways for high-resource users of health and social care services.
  • NHSScotland Chief Executive's Annual Report

The Scottish Government has published the NHSScotland Chief Executive's Annual Report 2014/15. Weblink. The report presents an assessment of the performance of NHSScotland in 2014/15 and describes key achievements and challenges.

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Practice

NICE guidance Care of Dying Adults in the Last Days of Life (England)

The National Institute for Health and Care Excellence (NICE) has published new guidance for the Care of Dying Adults in the Last Days of Life.

NICE guidance on older people with long-term conditions (England)

The National Institute for Health and Care Excellence (NICE) has also published new guidance for social care staff caring for people with long-term conditions.

Sharing Scottish Practice

This month the SPPC Sharing Scottish Practice blog features five posters displayed at the 2015 SPPC annual conference:

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Academic and Research

Numbers and needs of children in Scotland requiring Palliative Care

The University of York recently published Children in Scotland requiring Palliative Care: identifying numbers and needs, the report of a piece of work commissioned by the Children’s Hospice Association Scotland (CHAS). The report sets out the findings from an investigation into the numbers of children and young people with life-limiting conditions in Scotland, and what current evidence says about their, and their families’, psychosocial support needs.

The overall purpose of the study was to develop an evidence base to support and inform planning for children’s palliative care in Scotland. It is hoped that the evidence generated will be a resource to organisations with responsibility for, or delivering services to, children and young people with life-limiting conditions.

End of Life Care themed review

The National Institute for Healthcare Research (NIHR) has published Better Endings, an independent report which compiles published and ongoing NIHR funded research into end of life care.

Marie Curie Research Grants

Marie Curie is calling for high quality palliative care research proposals that address one or more of the research priorities identified by the Palliative and end of life care Priority Setting Partnership (PeolcPSP). All applications should be made on the outline application form available from the Marie Curie research website. The deadline for outline applications is Thursday 14 January 2016.

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Public and Patient Experience

Family carer perspectives of acute hospital care following a diagnosis of motor neuron disease: a qualitative secondary analysis

This paper by Mary R O'Brien and Harriet Preston explores the experience of hospitalisation following a diagnosis of motor neurone disease from the perspective of family carers of those diagnosed with the illness.

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Web News

Hospice UK Annual Conference

Hospice UK has made available online presentations and videos of some of the sessions at their recent conference The Art and Science of Hospice Care.

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SPPC News

SPPC Annual Conference 2016: Save the Date

Next year's Scottish Partnership for Palliative Care Annual Conference will take place on 22 September 2016 at the Royal College of Surgeons of Edinburgh. We welcome ideas of topics and speakers for the programme – please get in touch if you would like to make a suggestion.

National Care Standards consultation

The SPPC has submitted a response to the recent consultation on draft overarching principles for new National Care Standards. The consultation was undertaken by the Care Inspectorate and Healthcare Improvement Scotland. The SPPC response can be viewed here: SPPC response to National Care Standards.

Changes to SPPC Council

Nichola Summers is stepping down from the SPPC Council and her role as the SPPC’s Honorary Treasurer. Sincere thanks to Nichola for her work and commitment to the SPPC in recent years.

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Other News

YouGov Poll on end of life care
Marie Curie has published findings from a survey which indicates that over half of people aged over 50 in the UK are not confident that they will get the care they need at the end of their life.

Revised guidance for doctors on confidentiality

The GMC are currently running a public consultation on a revised draft of their guidance on confidentiality. The closing date for responses is 10 February 2016.

NCPC & Dying Matters move offices (England)

The National Council for Palliative Care & Dying Matters have moved offices. Their new address from 7th December 2015 is The National Council for Palliative Care, 34-44 Britannia Street, London, WC1X 9JG.

Changes at the Centre for Death and Society
Prof Tony Walter his stepping down from the role of Director of the Centre for Death and Society in Bath. Dr John Troyer will take over this role.

In the media

The SPPC does not undertake a comprehensive media monitoring service. Listed below are some of the stories relevant to palliative and end of life care that have appeared in the media over the last month. For more media coverage relating to palliative and end of life care, check out the eHospice website.

The Scotsman: Pat Carragher: Palliative care needed more than ever

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And Finally...

...in each edition of Update we try to end with something a little bit thought-provoking or different. This month, a family physician reflects how he continues to derive sustenance from having cared for a dying woman and her family over several home visits in his earliest years of private practice: “I think of them whenever I see snow falling on the water. Each Christmas reminds me of a special love between a dying woman, her husband, and their teenage daughter.” Read more here: I Remember…It Was December by Richard Colgan.

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Courses and Events

Save the date: SPPC Annual Conference 2016

Next year's Scottish Partnership for Palliative Care Annual Conference will take place on 22 September 2016 at the Royal College of Surgeons of Edinburgh. More details to follow.

 

Death Cafe

11 January 2016, 6pm, Serenity Cafe, Edinburgh. More information is available here: weblink

 

Lymphoedema: Application of Core Skills & Knowledge

18 January 2016, Glasgow. For more information email or phone 0141 3302072.

 

End of Life Care - Holyrood Policy Conference

19th January, Edinburgh. More information is available here: weblink.

Implementing the NICE Clinical Guideline on Care of the Dying Adult

Tuesday 26 January 2016, London. More information is available here: weblink. (A 20% discount is available by quoting ref: HCUK20SPPC when booking)

Primary care in Scotland: workforce, funding and delivery of care

27 January 2016, Edinburgh. More information is available here: weblink.

Lymphoedema Specialist Practice

1 February 2016, Glasgow. For more information email or phone 0141 330 2972.

Lymphoedema Advanced Practice (University of Glasgow)

Course Commences 1 February 2016 with attendance in Glasgow dates 23– 24 March 2016. More information is available here: weblink.

Sudden Death & Breaking Bad News Meeting the Challenges of Supporting Traumatically Bereaved Children & Families

4 February 2016, Glasgow.For more information contact Sarah Maynard: 01494 569055.

Promoting Continence - putting theory into practice

22nd February 2016, Dunblane Hydro. FREE. More information here: weblink

Integrating health and social care in Scotland

2 March 2016. More information is available here: weblink.

Grief & Bereavement in Schools - 'Let's Talk About It' Conference

7 March 2016, Stirling. For more information contact Sarah Maynard: 01494 569055.

Rediscovering Holism: the future for Palliative Care

The 11th Palliative Care Congress, 9 - 11 March 2016, Glasgow. More information is available here: weblink

Highland Palliative Care Course: Living Until you Die - Crossing Boundaries in Palliative Care

15 & 16 March 2016, Inverness. Course details are available here: weblink

‘Rehabilitation in palliative care: Supporting people to live actively until they die’

6 May 2016,Glasgow. More information is available here: weblink

Priorities for palliative and end of life care in Scotland

2 June 2016, Edinburgh. More information is available here: weblink.

Strathcarron Hospice Annual Conference: New Directions In Palliative Medicine - Living with Dying: Challenges Towards the End of Life

29 - 30 September 2016, Polmont. More information is available here: weblink.

St. Andrew’s Hospice Education Department Courses

All of the courses below take place at St Andrew's Hospice, Henderson Street, Airdrie ML6 0DJ. For more information contact Christine Reaoch: 01236 772017 or the St Andrew's Hospice website.

Communication, Loss Grief and Bereavement

This two day course will take place on the following dates:

 

  • 19 and 26 January 2016
  • 19 and 26 February 2016,
  • 5 and 12 April 2016
  • 24 and 31 May 2016
  • 16 and 23 June 2016

 

Introduction to Spirituality in Health Care

This two day course will take place on the following dates:

 

  • 22 and 29 January 2016
  • 15 and 22 March 22
  • 5 and 12 May 2016

 

End of Life Care

  • 20 January 2016
  • 20 April 20 2016

Breaking Bad News

16 March 2016

Communication in Crisis

7 June 2016

Cancer Pain

27 January and 24 February 2016

Advanced Therapeutic Communication Skills - Using Personality Type

25 February and 3 March 2016

Managing Challenging Behaviour

12 February 2016

Palliative Care for Health Care Assistants

11 and 18 February 2016

11 and 18 May 2016

3 Day First Aid at Work

2 - 16 February 2016

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