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Welcome to Update, a monthly roundup of news relevant to palliative care in Scotland, brought to you by the Scottish Partnership for Palliative Care. |
Policy |
Strategic Framework for Action The Scottish Government has published a new Strategic Framework for Action for Palliative and End of Life Care. The Framework, an Executive Summary and a Supporting Evidence Summary can be downloaded here: weblink Guidance to Integration Authorities on Strategic Commissioning PlansScottish Government has issued guidance on the production and content of strategic commissioning plans which must be produced by integration authorities. One outcome indicator pertains to end of life. See the guidance here: weblink Improvement Collaborative (which includes a focus on ACP) Living Well in Communities is a collaboration which aims to support people to spend more time living at home or in a homely setting. Improvement activity will focus on five key areas which have been identified as areas where the pace and scale of improvement can be increased if additional improvement support is provided:
The Scottish Government has published the NHSScotland Chief Executive's Annual Report 2014/15. Weblink. The report presents an assessment of the performance of NHSScotland in 2014/15 and describes key achievements and challenges. |
Practice |
NICE guidance Care of Dying Adults in the Last Days of Life (England) The National Institute for Health and Care Excellence (NICE) has published new guidance for the Care of Dying Adults in the Last Days of Life. NICE guidance on older people with long-term conditions (England) The National Institute for Health and Care Excellence (NICE) has also published new guidance for social care staff caring for people with long-term conditions. Sharing Scottish Practice This month the SPPC Sharing Scottish Practice blog features five posters displayed at the 2015 SPPC annual conference:
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Academic and Research |
Numbers and needs of children in Scotland requiring Palliative Care The University of York recently published Children in Scotland requiring Palliative Care: identifying numbers and needs, the report of a piece of work commissioned by the Children’s Hospice Association Scotland (CHAS). The report sets out the findings from an investigation into the numbers of children and young people with life-limiting conditions in Scotland, and what current evidence says about their, and their families’, psychosocial support needs. The overall purpose of the study was to develop an evidence base to support and inform planning for children’s palliative care in Scotland. It is hoped that the evidence generated will be a resource to organisations with responsibility for, or delivering services to, children and young people with life-limiting conditions. End of Life Care themed review The National Institute for Healthcare Research (NIHR) has published Better Endings, an independent report which compiles published and ongoing NIHR funded research into end of life care. Marie Curie Research Grants Marie Curie is calling for high quality palliative care research proposals that address one or more of the research priorities identified by the Palliative and end of life care Priority Setting Partnership (PeolcPSP). All applications should be made on the outline application form available from the Marie Curie research website. The deadline for outline applications is Thursday 14 January 2016. |
Public and Patient Experience |
| This paper by Mary R O'Brien and Harriet Preston explores the experience of hospitalisation following a diagnosis of motor neurone disease from the perspective of family carers of those diagnosed with the illness. |
Web News |
Hospice UK Annual Conference Hospice UK has made available online presentations and videos of some of the sessions at their recent conference The Art and Science of Hospice Care. |
SPPC News |
SPPC Annual Conference 2016: Save the Date Next year's Scottish Partnership for Palliative Care Annual Conference will take place on 22 September 2016 at the Royal College of Surgeons of Edinburgh. We welcome ideas of topics and speakers for the programme – please get in touch if you would like to make a suggestion. National Care Standards consultation The SPPC has submitted a response to the recent consultation on draft overarching principles for new National Care Standards. The consultation was undertaken by the Care Inspectorate and Healthcare Improvement Scotland. The SPPC response can be viewed here: SPPC response to National Care Standards. Changes to SPPC Council Nichola Summers is stepping down from the SPPC Council and her role as the SPPC’s Honorary Treasurer. Sincere thanks to Nichola for her work and commitment to the SPPC in recent years. |
Other News |
YouGov Poll on end of life care Revised guidance for doctors on confidentiality The GMC are currently running a public consultation on a revised draft of their guidance on confidentiality. The closing date for responses is 10 February 2016. NCPC & Dying Matters move offices (England) The National Council for Palliative Care & Dying Matters have moved offices. Their new address from 7th December 2015 is The National Council for Palliative Care, 34-44 Britannia Street, London, WC1X 9JG. Changes at the Centre for Death and Society In the media The SPPC does not undertake a comprehensive media monitoring service. Listed below are some of the stories relevant to palliative and end of life care that have appeared in the media over the last month. For more media coverage relating to palliative and end of life care, check out the eHospice website. The Scotsman: Pat Carragher: Palliative care needed more than ever |
And Finally... |
| ...in each edition of Update we try to end with something a little bit thought-provoking or different. This month, a family physician reflects how he continues to derive sustenance from having cared for a dying woman and her family over several home visits in his earliest years of private practice: “I think of them whenever I see snow falling on the water. Each Christmas reminds me of a special love between a dying woman, her husband, and their teenage daughter.” Read more here: I Remember…It Was December by Richard Colgan. |
Courses and Events |
Save the date: SPPC Annual Conference 2016Next year's Scottish Partnership for Palliative Care Annual Conference will take place on 22 September 2016 at the Royal College of Surgeons of Edinburgh. More details to follow.
Death Cafe11 January 2016, 6pm, Serenity Cafe, Edinburgh. More information is available here: weblink
Lymphoedema: Application of Core Skills & Knowledge18 January 2016, Glasgow. For more information email or phone 0141 3302072.
End of Life Care - Holyrood Policy Conference19th January, Edinburgh. More information is available here: weblink. Implementing the NICE Clinical Guideline on Care of the Dying AdultTuesday 26 January 2016, London. More information is available here: weblink. (A 20% discount is available by quoting ref: HCUK20SPPC when booking) Primary care in Scotland: workforce, funding and delivery of care27 January 2016, Edinburgh. More information is available here: weblink. Lymphoedema Specialist Practice1 February 2016, Glasgow. For more information email or phone 0141 330 2972. Lymphoedema Advanced Practice (University of Glasgow)Course Commences 1 February 2016 with attendance in Glasgow dates 23– 24 March 2016. More information is available here: weblink. Sudden Death & Breaking Bad News Meeting the Challenges of Supporting Traumatically Bereaved Children & Families4 February 2016, Glasgow.For more information contact Sarah Maynard: 01494 569055. Promoting Continence - putting theory into practice22nd February 2016, Dunblane Hydro. FREE. More information here: weblink Integrating health and social care in Scotland2 March 2016. More information is available here: weblink. Grief & Bereavement in Schools - 'Let's Talk About It' Conference7 March 2016, Stirling. For more information contact Sarah Maynard: 01494 569055. Rediscovering Holism: the future for Palliative CareThe 11th Palliative Care Congress, 9 - 11 March 2016, Glasgow. More information is available here: weblink Highland Palliative Care Course: Living Until you Die - Crossing Boundaries in Palliative Care15 & 16 March 2016, Inverness. Course details are available here: weblink ‘Rehabilitation in palliative care: Supporting people to live actively until they die’6 May 2016,Glasgow. More information is available here: weblink Priorities for palliative and end of life care in Scotland2 June 2016, Edinburgh. More information is available here: weblink. Strathcarron Hospice Annual Conference: New Directions In Palliative Medicine - Living with Dying: Challenges Towards the End of Life29 - 30 September 2016, Polmont. More information is available here: weblink. St. Andrew’s Hospice Education Department CoursesAll of the courses below take place at St Andrew's Hospice, Henderson Street, Airdrie ML6 0DJ. For more information contact Christine Reaoch: 01236 772017 or the St Andrew's Hospice website. Communication, Loss Grief and Bereavement This two day course will take place on the following dates:
Introduction to Spirituality in Health Care This two day course will take place on the following dates:
End of Life Care
Breaking Bad News 16 March 2016 Communication in Crisis 7 June 2016 Cancer Pain 27 January and 24 February 2016 Advanced Therapeutic Communication Skills - Using Personality Type 25 February and 3 March 2016 Managing Challenging Behaviour 12 February 2016 Palliative Care for Health Care Assistants 11 and 18 February 2016 11 and 18 May 2016 3 Day First Aid at Work 2 - 16 February 2016 |
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