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SG Strategic Framework for Action

The SPPC tries to make these updates as accurate, comprehensive and current as possible. Please let us know if you spot any inaccuracies or are aware of other information which could usefully and appropriately be shared.

The process of implementation is being framed by the Scottish Government in terms of the 10 Commitments set out within the Strategic Framework for Action on Palliative and End of Life care (SFA) and this update follows that structure. Scottish Government have created a page on their website relating to implementation of the SFA here

Update: May 2017

National Implementation Advisory Group

The National Implementation Group (NIAG) met in April and a refreshed work plan with key actions and timelines is being developed. The next meeting is scheduled for 16th August 2017.

Improvement (Commitment 1)

This programme is being led by/situated in the Living Well in Communities arm of HIS (iHub). Dr Paul Baughan has been appointed as National Clinical Lead for the project (medical) and Sandra Campbell has been appointed to National Clinical Lead (nursing). The equivalent social work role is currently being finalised. Michelle Church has joined as National Improvement Advisor for the project. Local improvement advisors are currently being recruited by the local test site HSCPs. The HSCPs identified to date are East Ayrshire, Glasgow City, Perth and Kinross, Western Isles/ Eilean Siar and Fife.

Guidance to HSCPs on Strategic Commissioning of Palliative Care (Commitment 2)

A Short Life Working Group to develop guidance on strategic commissioning of palliative and end of life care has met three times, most recently in March, and a second draft of guidance is currently being produced.

Education (Commitment 3)

The Education Framework has been published: Enriching & Improving Experience. The focus will now shift to developing support for implementation. NES have a webpage with project updates and other resources.

Palliative Care for Babies, Children & Young People (Commitment 4)

SCYYPEx recently convened a consultation event for key stakeholders to consider the way forward for palliative care for babies, children and young people across Scotland. A formal report is expected shortly.

Research (Commitment 5)

The palliative and end of life care Research Forum has met 3 times. Notes of the first 2 meetings and presentations are available on the SG website here. Findings from a systematic review of Scottish palliative care over the past 10 years were presented at an event sponsored by Marie Curie on 11th May.

Support greater public and personal discussion of bereavement, death, dying and care at the end of life (Commitment 6)

SG has made some funding available to SPPC to support its leadership in this area, and the SPPC is currently recruiting a new post to support this work.

eHealth to Support ACP sharing (Commitment 7)

The HIS web space for the project on ACP can be accessed here. New national documentation for Anticipatory Care Planning will be launched on 7th June and you can book for the event here (currently full, waiting list available).

Clinical and health economic evaluations of palliative and end of life care models (Commitment 8 )

This commitment seems likely to be informed by work on the commitments relating to strategic commissioning, research and data.

Data (Commitment 9)

A work plan for 2017-18 to be delivered by ISD has been agreed by NIAG. The plan identifies priorities for developing routine analyses based on existing data and work priorities to address current data gaps.

Bereavement

Responsibility at SG for bereavement has moved into the SG palliative and end of life care team headed by Tim Warren.

Update: 9 February

National Implementation Advisory Group

The National Implementation Group met in December under the new Chairmanship of Geoff Huggins. There have been some changes to membership and mode of operation.

Papers from the first meeting in June are available here

Scottish Parliament Health and Sport Committee

The Cabinet Secretary for Health, Wellbeing and Sport has written a letter to the Health and Sport Committee in response to their letter requesting information in relation to progress with implementation of the Strategic Framework for Action on Palliative and End of Life Care.

Improvement (Commitment 1)

This programme is being led by/situated in the Living Well in Communities arm of HIS (iHub). Local improvement advisors and national clinical leads are currently being recruited by HIS. The HSCPs identified to date are East Ayrshire, Glasgow City, Perth and Kinross, Western Isles/ Eilean Siar and Fife.

Education (Commitment 3)

A draft Education Framework is out for consultation. The deadline for responses is 20 Feb 2017.

Research (Commitment 5)

The palliative and end of life care Research Forum has met twice. Notes of meetings and presentations are available on the Scottish Government website here. The third meeting of this forum will take place from 10am to 4pm on Thursday 23 February 2017 in Edinburgh. More information and the opportunity to reserve a place is available here: weblink

Support greater public and personal discussion of bereavement, death, dying and care at the end of life (Commitment 6)

The NIAG has asked that the Scottish Partnership for Palliative Care lead the next stage of this work.

Update: 14 December

Thanks to Scottish Government for providing the following update:

Changes within Scottish Government

The Scottish Government Palliative and End of Life Care Team have recently moved Directorate and are now based in the Directorate for Health and Social Care Integration, rather than Person Centred Team in the Directorate for Healthcare Quality and Improvement. There has therefore been an adjustment in the chairing arrangements for the National Implementation Advisory Group on Palliative and End of Life Care (NIAG). As of December 2016 these responsibilities will transfer from Professor Craig White, (Divisional Clinical Lead within the Healthcare Quality and Improvement Directorate) to Geoff Huggins, Director of Health and Social Care Integration.

This move will align the palliative and end of life care work with the wider Health and Social Care Integration agenda, and will be helpful in supporting Health and Social Care Partnerships in the implementation of the SFA.

Clinical leadership is vital for the implementation of the SFA, and the policy team will continue to draw on that leadership from within Scottish Government and from those most closely involved in the delivery of palliative care.

Update: 12 December

Scottish Parliament Health & Sport Committee

Shona Robison, Cabinet Secretary for Health and Wellbeing has written a letter to the Scottish Parliament Health and Sport Committee in response to their request for an update on the implementation of the Strategic Framework for Action on Palliative and End of Life Care (SFA).

Scottish Research Forum for Palliative and End of Life Care

The next meeting of the Research Forum will be on Thursday 23 February 2017 from 10.30am - 4pm in central Edinburgh. Everyone is invited to this forum where research relevant to the Strategic Framework for Action will be shared. The meeting is free and lunch is provided. Further information and booking details will be available soon. For more information please contact Prof Scott Murray or Prof Bridget Johnston.

Palliative and End of Life Care Education Community of Practice website

NHS Education for Scotland (NES) and Scottish Social Services Council(SSSC) are working together to develop a national education and development framework for the health and social services workforce.

They have set up a new website which aims to:

  • Provide a forum for engagement with the development of the new national education and development framework.
  • Allow people to contribute and provide input towards the identification of training needs of the workforce to address identified gaps in knowledge and skills for palliative and end of life care.
  • Share information on the evolving progress of the national education and development framework.

Update: 15 November 2016

SPPC has tried to make this update as accurate, comprehensive and current as possible. Please let us know if you spot any inaccuracies or are aware of other information which could usefully and appropriately be shared.

The process of implementation is being framed by the Scottish Government (SG) in terms of the 10 Commitments set out within the Strategic Framework for Action on Palliative and End of Life care (SFA) and this update follows that structure. Scottish Government has created a page on their website relating to implementation of the SFA here.

National Implementation Advisory Group

The National Implementation Group met for the first time in June. Papers from that meeting are available here. Following cancellation of the September meeting, the second meeting of the group will take place on 14 December 2016.

Improvement (Commitment 1)

SG intends to fund local improvement advisors in five or six Health and Social Care Partnerships (HSCPs) together with some national improvement support including some expert practitioner input. This programme will be led by/situated in the Living Well in Communities arm of HIS (iHub). The partnerships identified to date are East Ayrshire, Glasgow City, Perth and Kinross, Western Isles/ Eilean Siar and Fife.

Guidance to HSCPs on Strategic Commissioning of Palliative Care (Commitment 2)

A Short Life Working Group to develop guidance on strategic commissioning of palliative and end of life care has met twice. The group is chaired by Christina Naismith from SG who has led the development of strategic planning (and other guidance) around integration. The initial membership and draft terms of reference can be found here. The guidance is expected to be published over the winter.

Education (Commitment 3)

A steering group to oversee development of the education framework continues to meet. The initial draft membership and terms of reference can be downloaded here. The Group is co-chaired by NHS Education Scotland (Lesley White) and Scottish Social Services Council (Ali Upton). A rapid mapping of educational resources was completed in 2015 and this has been complemented by some focus group work in 2016. Three regional educational practice development posts have been appointed. Work on needs analysis and engagement on principles to underpin the framework is being carried out.

Babies, children and young people (Commitment 4)

The Scottish Government has announced approximately £30m to support the work of the Children’s Hospice Association Scotland over the next 5 years.

Research (Commitment 5)

The palliative and end of life care Research Forum has met twice. Notes of meetings and presentations are available on the SG website here. To get involved or for more information email Scott Murray or Bridget Johnston. The next meeting of the research Forum is expected to be 23 February 2017.

Support greater public and personal discussion of bereavement, death, dying and care at the end of life (Commitment 6)

Anne Mills (CEO Ardgowan Hospice) will no longer be able to chair a group looking at this commitment, having recently secured a new role in the Isle of Man.

eHealth to Support ACP sharing (Commitment 7)

A process for identifying the specification required for future eHealth developments to support anticipatory care planning is underway, and will take cognisance of UK-wide development of an emergency care and treatment plan.

Data (Commitment 9)

SG is funding additional analyst capacity at Information Services Division (ISD) and is planning to exploit opportunities afforded by data linkage (which is being progressed to support the planning by HSCPs). A group is has been established under the auspices of the NIAG to advise on a set of data requirements, so that the products of analysis are those of most value and most likely to be used and also to advise on data which might be available from other sources, or which might need commissioning.

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