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New group established to advise Scottish Government on Palliative Care

The Scottish Government is establishing a National Implementation Advisory Group to advise it on the implementation of the commitments set out within the Strategic Framework for Action. The members of the new group are:

  • Craig White (Chair), Divisional Clinical Lead, Planning and Quality Division, Scottish Government
  • Alan Baird, Chief Social Work Adviser, Scottish Government
  • David Clark, Director of Interdisciplinary Studies, University of Glasgow
  • Ron Culley, Chief Officer, Western Isles Integrated Joint Board
  • Amy Dalrymple, Head of Policy, Alzheimer Scotland
  • Mark Hazelwood, Chief Executive, Scottish Partnership for Palliative Care
  • Colette Ferguson, Executive Director of Nursing and AHPs, NHS National Education Scotland
  • Beth Hall, Policy Manager, Convention Of Scottish Local Authorities (COSLA)
  • Ann Holmes, Associate Chief Nursing Officer, Scottish Government
  • Jeremy Keen, CMO Specialty Advisor for Palliative Medicine
  • Paul Leak, Integrated Resource Framework Lead, Scottish Government
  • Kate Lennon, Chief Executive, St Vincent’s Hospice
  • Donald Macaskill, CEO, Scottish Care
  • Maria McGill, Chief Executive, Children’s Hospice Association Scotland
  • Peter McLoughlin, Strategic Planning Manager, NHS Lothian
  • Mairi MacPherson, Head Person Centred and Quality Unit, Scottish Government
  • Alpana Mair, Deputy Chief Pharmaceutical Officer, Scottish Government
  • Marjory Marshall, Health Economist, Scottish Government
  • Richard Meade, Head of Policy and Public Affairs – Scotland, Marie Curie
  • Anne Mills, Chief Executive, Ardgowan Hospice
  • Scott Murray, St Columba’s Hospice Chair of Primary Palliative Care, University of Edinburgh
  • Christina Naismith, National Lead for Strategic Commissioning, Scottish Government
  • John Nugent, Senior Medical Officer for Primary Care, Scottish Government
  • Eddie Turnbull, Head of eHealth, Scottish Government
  • Tim Warren, Policy Lead for Palliative and End of Life Care, Scottish Government
  • June Wylie, Head of Implementation and Improvement, Healthcare Improvement Scotland

The first meeting of the group will take place on Friday 3rd June. The key contact at the Scottish Goverment relating to the Strategic Framework for Action is Tim Warren, Policy Lead for Palliative and End of Life Care.

To Absent Friends: Activity Report and Evaluation

We have published a report reflecting on the success of last year's To Absent Friends festival. The report outlines the aims and rationale behind the festival, and gives an overview of festival activity. The report explores ways of evaluating the effectiveness of the festival, and reflects on learning gained.

The full report can be accessed here: To Absent Friends: Activity Report and Evaluation 2015

SPPC Work Plan for 2016-17

We are pleased to announce the publication of our work plan for the coming year.

The SPPC exists in order to promote equitable access throughout Scotland to high quality palliative care for all patients and families on the basis of need not diagnosis. The emergence of “health promoting palliative care” has broadened the scope of work to include determinants of better death, dying and bereavement which lie out with the domain of traditional formal health and social care services.

The Work Plan for 2016-17 sets out the activities we plan to undertake over the coming year, all of which aim to support our six strategic priorities:

  • to provide strategic leadership in improving the experience of death, dying and bereavement in Scotland. By this we mean: maintaining a whole system perspective and associated intelligence; advocating the importance and value of palliative and end of life care; contributing to the development of strategic thinking and national policy and brokering strategic collaboration.
  • to identify, and support the spread of, good practice and innovation.
  • to promote public and professional awareness, understanding and knowledge of ways to improve death, dying and bereavement and promote public dialogue around these issues.
  • to encourage effective planning for better death, dying and bereavement by the public, and by professionals together with patients and families, at all stages of life.
  • to work to ensure that the experiences of the public, patients and families inform the development and implementation of policy and practice.
  • to undertake any necessary organisational change/development required to deliver these strategic objectives.

The plan can be accessed here: Work Plan for 2016-17

New palliative care research forum

All palliative and end-of-life care researchers in Scotland are welcome to attend a meeting of the new Scottish Research Forum for Palliative and End of Life Care. The group will meet on Friday 6 May at St Columba’s Hospice, Edinburgh.

The Scottish Government's Strategic Framework for Action for Palliative and End of Life Care outlines 10 specific commitments related to improving palliative and end of life care in Scotland, including Commitment 5:

"We will strengthen and co-ordinate research and knowledge exchange across regions, institutions and disciplines by taking further action to support the establishment of a Scottish Research Forum for palliative and end of life care."

The framework specifies that a strategic approach needs to be taken to develop a sustainable and innovative national programme of research that directly informs clinical practice and policy. It is specified that the Research Forum “will provide a platform to share emerging examples of good practice and experience of what works, for whom and why, facilitating knowledge exchange, informing evidence-based decision making and driving quality improvement”.

All palliative and end-of-life care researchers in Scotland are welcome to attend the new Research Forum, which will meet on Friday 6 May at St Columba’s Hospice, Edinburgh. It will start at 10.30am and finish at 4pm with coffee from 10am and lunch at 12.30.

There will be an opportunity to hear about the rationale and great potential of this Forum from Tim Warren, the new Policy Lead at the Scottish Government. There will also be the opportunity to discuss the terms of reference of the group, and for participants to consider how their own research can contribute to the commitments set out within the Strategic Framework for Action. There will also be a presentation about a proposed scoping review of Scottish research, and the chance to meet research users from NHS Education Scotland.

If you would like to attend please inform Susan Thorburn directly at St. Columba’s Hospice with a copy of the email to Anne Finucane by 29th April.

New report on public health approaches to palliative care

The Scottish Public Health Network has published Palliative and end of life care in Scotland: The rationale for a public health approach.

The report aims to examine the rationale for applying a public health approach to palliative and end of life care, and to explore where and how public health approaches could be applied to support local service planning and delivery. The report is accompanied by 5 briefing papers and includes 17 recommendations.

The full report can be accessed here:Palliative and end of life care in Scotland: The rationale for a public health approach.

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