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Welcome to Update, a monthly round-up of news relevant to palliative care in Scotland, brought to you by the Scottish Partnership for Palliative Care. |
Policy |
Westminster Health & Social Care Committee Evidence Session The Westminster Parliament Health & Social Care Committee has held an evidence session looking at provision of palliative care in England, as part of their inquiry into assisted dying / assisted suicide. Watch a video of the session here: https://parliamentlive.tv/Event/Index/78b597cb-b29c-4471-a104-c498e5cada25 |
Practice |
Palliative Care Research Directory The new APM/PCRS Palliative Care Research Directory is now available via the following links: Resources and Resources for junior doctors. Practical cancer cachexia management in palliative care A review of the current evidence relating to the practical management of cancer cachexia in palliative care is now available to read here. Sharing current Scottish Practice The SPPC Autumn Season 2022 featured an online poster exhibition of 55 posters, sharing work and research underway across Scotland. Each month, our blog highlights a few of these posters. This month, we're highlighting:
The SPPC blog is a space to share practice currently underway in Scotland. If you have practice you'd like to share, please get in touch. |
Academic and Research |
Marie Curie Research Impact Fund The Marie Curie Research Impact Fund is open to applications from 12 July 2023 to 4 October 2023, with decisions expected by December 2023. If you would like to discuss the scheme and any planned applications with a member of the Marie Curie Research Management Team, please email research.grants@mariecurie.org.uk. The application and guidance can be found here. Open Call for Abstracts - Marie Curie Research Conference 2024 Abstract submission is now open for the Marie Curie Research Conference 2024 which will take place virtually from 5 - 9 February 2024 and will be free for all to attend. Abstracts are invited for short oral presentations and posters on research in palliative and end of life care. All abstracts that are selected will be published in the BMJ Supportive and Palliative Care journal. More information about the conference and the call for abstracts, including the themes, can be found on the Marie Curie website. To submit an abstract, please complete this form by 5pm on Monday 9 October 2023. Registrations for the conference will open in November 2023. Seeking Excellence in End of Life Care UK (SEECare UK): a UK multi-centred service evaluation The results of a study evaluating the care of patients dying in hospital without support from specialists in palliative care (SPC) is now available to read here. |
Public and Patient Perspectives |
Survey - Patient-reported outcome measures (PROMs) in palliative care for heart failure Harley Anderson, a PhD Student at the University of the West of England (UWE Bristol), is undertaking a national survey to understand what patient-reported outcome measures (PROMs) are used in patients with heart failure and a palliative care diagnosis, including any barriers and facilitators to their use in routine practice. PROMs are questionnaires that ask patients about their needs, symptoms, or ability to do certain tasks that are related to their condition. If you are a healthcare professional who cares for patients with heart failure and a palliative care diagnosis in the UK, consider taking 5-10 minutes to complete this online survey, and sharing with your networks. Complete the survey here: https://tinyurl.com/42dkj8er You don’t need any prior knowledge or experience of PROMs to take part in the survey. The survey will close on Sunday 27th August. This survey is part of a research project which aims to develop a set of recommendations on the choice, administration, and use of PROMs in palliative care for heart failure. If you have any questions, please contact harley.anderson@uwe.ac.uk |
SPPC News |
Book now for SPPC Annual Conference 2023 The Scottish Partnership for Palliative Care Annual Conference will take place on Wednesday 22 November 2023 at the Royal College of Physicians of Edinburgh, 9 Queen Street, Edinburgh, EH2 1JQ. Featuring a mix of high quality speakers and delegate interaction the conference will provide an opportunity to:
Planned topics at the conference include:
You can find out more and register here. SPPC Annual Conference 2023 - Call for Posters Are you involved in an interesting project or in an area of work that you would like to discuss with or show to other conference attendees? Why not present your work in the poster exhibition which is an essential part of learning and sharing best practice at the Scottish Partnership for Palliative Care Annual Conference. If you are at all interested in presenting a poster please contact Pauline@palliativecarescotland.org.uk for a proposal form for completion. The closing date for submissions is Friday 27 October 2023. SPPC Annual Conference 2023 - Call for Exhibition Stands / Publication Displays Once again this year there will be an opportunity to exhibit at the Scottish Partnership for Palliative Care Annual Conference. The exhibitor area at the conference provides generous space for exhibitions and displays with direct access to the catering area, seating, posters and breakout rooms. If you are interested in bringing along a display stands, please contact Pauline Ellison for a proposal form for completion. Pauline@palliativecarescotland.org.uk The closing date for submissions is Friday 27 October 2023. Public Health Palliative Care Survey The Scottish Government is developing a new strategy for palliative and end of life care. As part of this work a Scottish Government Development Group facilitated by SPPC has been formed. The Group will explore how the new strategy can support communities to gain knowledge, skills, confidence and opportunities to plan ahead, and to give and receive support relating to serious illness, dying, death and bereavement. The members of the Development Group are keen to hear the insights of people who are already involved in work in this area in Scotland, either in a professional or personal capacity. We would grateful if you could take a few minutes to tell us what you think via the survey here. The survey closes on Friday 11 August. Help to Inform SPPC’s Response to the Scottish COVID-19 Inquiry SPPC is developing a collective submission to the Scottish COVID-19 Inquiry, focussing on palliative and end of life care. The Inquiry is keen to hear people’s responses to 3 key questions:
SPPC is interested in your response to these questions to guide and inform a collective submission. Responses can be sent to mark@palliativecarescotland.org.uk . Responses to SPPC will be treated as confidential. Alternatively (or additionally) you can submit a response directly to the Inquiry here. Scottish Compassionate Communities Networking Event This online networking event, organised by Truacanta: Scotland's Compassionate Commuity Network, is for anyone involved in or interested in learning more about compassionate community activity in Scotland. There will be the chance to share your experiences, reflections, challenges and opportunities with each other. We will also be launching the final evaluation of the Truacanta Project which ran from 2019 – 2023; we’ll share key learnings, members of the Truacanta communities will share their own reflections on being part of the project, and attendees will have a chance to ask questions. Book a free place here: Truacanta Networking Event or email caroline@palliativecarescotland.org.uk for more information. To Absent Friends Festival - Small Grants Available A small grants fund has been set up to support organisations to hold remembrance events as part of this year's To Absent Friends festival (1-7 November 2023.) Two types of small grants (of up to £300) are available: Community grants: These are for organisations and communities who want to plan private remembrance events at which their community can come together (in person or online) to share memories, stories and solace. Public grants: These are for organisations who want to organise an interactive public event such as a concert, exhibition or installation, freely open to members of the public. The deadline for applications is 28 August 2023. More information is available here: To Absent Friends Small Grants To Absent Friends Festival - Photo Competition: Capture the Essence of a Memory The Essence of a Memory photography competition invites participants to submit a photo and write up to fifty words which together evoke a story or memory of someone important in their life who has died. Winning entries will form part of a new exhibition to mark the 10th anniversary of the To Absent Friends Festival. The new exhibition will be launched at an evening reception in the Scottish Storytelling Centre on 1 November. The winner of the adult category will receive £500, and the winner of the children's category will receive £50. The competition is open to people residing in Scotland. Find out more about the competition and how to enter here: Essence of a Memory Competition To Absent Friends Festival - Art Commission The Scottish Partnership for Palliative Care is looking to commission an artist to envision and create an interactive art installation to mark the 10th Anniversary of the To Absent Friends festival. This commission is for an artist or collective resident in the UK. Relevant experience working with public interactive art installations is desirable, but a track record of delivering other types of installation exhibitions plus a good idea and plan for your first public interactive installation will also be considered. Applications should be submitted to samara@palliativecarescotland.org.uk by 12 noon on Monday 7 August 2023. More information including a detailed project brief is available here: To Absent Friends 10th Anniversary Art Commission |
Other News |
Prince & Princess of Wales Hospice Chief Executive awarded OBE Congratulations to Rhona Baillie, Chief Executive of the Prince & Princess of Wales hospice in Glasgow, who has been awarded an OBE in King Charles' Birthday Honours list. Read more here. Macmillan education and training for the cancer workforce Macmillan’s Learning Hub offers a free 90 minute e-learning module called Help for the Helpers (created in collaboration with Lisa Nel and Mark Stancombe) designed to support Health and Social Care Professionals to understand what neuroscience is teaching about the long-term impact of helping others and how you can sustainably protect yourself from Vicarious Traumatisation. Already got a Learning Hub account? Visit Macmillan (fuseuniversal.com) or register for an account today at Macmillan Learning Hub (microsoft.com). Survey - Patient-reported outcome measures (PROMs) in palliative care for heart failure Harley Anderson, a PhD Student at the University of the West of England (UWE Bristol), is undertaking a national survey to understand what patient-reported outcome measures (PROMs) are used in patients with heart failure and a palliative care diagnosis, including any barriers and facilitators to their use in routine practice. PROMs are questionnaires that ask patients about their needs, symptoms, or ability to do certain tasks that are related to their condition. If you are a healthcare professional who cares for patients with heart failure and a palliative care diagnosis in the UK, consider taking 5-10 minutes to complete this online survey, and sharing with your networks. Complete the survey here: https://tinyurl.com/42dkj8er You don’t need any prior knowledge or experience of PROMs to take part in the survey. The survey will close on Sunday 27th August. This survey is part of a research project which aims to develop a set of recommendations on the choice, administration, and use of PROMs in palliative care for heart failure. If you have any questions, please contact harley.anderson@uwe.ac.uk |
Courses and Events |
Webinar - Body Donation in Scotland – Understanding What Happens After A Person Dies Organised by NHS Education for Scotland. Wednesday 30 August 2023, 5-6pm, online. See the flyer here, and find out more and register at the website. Namaste Care Online Training Course Dates for 2023Organised by Prince & Princess of Wales Hospice and Ayrshire Hospice. 3 October and 7 November 2023, online. More information is available here. 2023 Global Ageing Network Biennial Conference Organised in partnership with Scottish Care and the National Care Forum. 7-8 September 2023, Glasgow. More information and early-bird registration is available at the conference website. The APM & PCRS Research Course (Autumn 2023): Understanding and Applying Research Methods in Practice Developed by the APM Research & Ethics Committee and the PCRS Executive Committee. 21 and 28 September online (MS Teams), 12 October in-person (Leeds). Find out more and register here, and contact admin@pcrs.org.uk with any questions. Strathcarron Hospice - Frailty and Rehabilitation in Palliative Care Conference Organised by Strathcarron Hospice. A Human Rights based approach to Palliative Care: Towards Solutions for Public Health Palliative Care SPPC Annual Conference 2023 Organised by the Scottish Partnership for Palliative Care. Wednesday 22 November 2023, Edinburgh College of Physicians. More information and registration is available here. Save the Date - The Grief We Carry Organised by NHS Education Scotland, the 4th Annual Bereavement Education Conference, will take place as an all-day online event on 28 November 2023. More details to follow. |
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