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Welcome to Update, a monthly round-up of news relevant to palliative care in Scotland, brought to you by the Scottish Partnership for Palliative Care. |
Policy |
A National Care Service for Scotland: consultation and palliative care event The Scotish Government is consulting on proposals to improve the way social care is delivered in Scotland, following the recommendations of the Independent Review of Adult Social Care. The closing date for receipt of responses is 2 November 2021. The Scottish Government are also holding a specific event focused on palliative care on Wednesday 20 October, 3-4pm. They are inviting the palliative care community to contribute to the discussion around the National Care Service and the opportunities and risks from the perspective of palliative care services. This session is intended to create space to hear feedback on what matters from a services perspective when thinking through the proposals for the reform of health and social care in Scotland. If you are able to attend the session please contact Laura Martin laura.martin2@gov.scot for further information and TEAMs meeting link. Scottish Government - Programme for Government The Scottish Government has published A Fairer, Greener Scotland: Programme for Government 2021-22. It includes the following commitments relating to palliative and end of life care: "To provide the very highest standards of care right up to the end of life, we will ensure that everyone who needs it can access seamless, timely and high‐quality palliative care. Over the coming year,we will develop and publish a new national strategy for palliative and end of life care that takes a whole system, public health approach. And we will ensure provision of high‐quality child palliative care, regardless of location, supported bysustainable funding of at least £7 million per year through Children’s Hospices Across Scotland." NHS Recovery Plan The Scottish Government has published its NHS Recovery Plan. COVID-19 Public Inquiry A Scottish Public Inquiry will be established to consider matters in relation to Scotland's handling of the COVID-19 pandemic. Views are being sought until the end of September on how the inquiry should be approached. Coronavirus initial health and social care response: lessons identified The Scottish Government has published a report examining the initial health and social care response to COVID-19 during March to September 2020. The report highlights examples of good practice and also cross cutting themes for further improvement. Isolation exemptions for health and social care staff The Scottish Government has published a framework for the implementation of isolation exemptions for health and social care staff.
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Practice |
Chief Medical Officer's guidance for clinicians completing a BASRiS form The Scottish Government has published guidance for clinicians who have a patient with a terminal illness and need to complete a Benefits Assessment for Special Rules in Scotland (BASRiS) form on their behalf. Updated guidance for when a person is imminently dying of COVID-19 lung disease The End of Life Care guidance for when a person is imminently dying with COVID-19 lung disease has been updated. |
Bereavement |
UK Commission on Bereavement A survey is available for people and organisations wishing to participate in the UK Commission on Bereavement. NES Bereavement Webinar Recordings The NES Bereavement Webinar series for health and social care professionals has hosted 11 sessions to date. Recordings and additional resources from previous sessions are available to view here: weblink. NES bereavement work stream annual report 2020-21 NHS Education for Scotland has recently published the Supporting Scottish Grief and Bereavement Care Workstream Annual Report providing information about the workstream's activities, events, collaborations and achievements over the last year and the work which was undertaken in response to the pandemic. Spiritual Care resources The following two resources are now available from NHS Education for Scotland: Spiritual Care Matters - An introductory resource for all NHSScotland Staff and A Multi-faith resource for healthcare staff. New animation about Scotland's Bereavement Charter An animated film about Scotland's Bereavement Charter has launched, providing an overview of what the charter means for health & social care professionals. |
Academic & Research |
Call for abstracts - Public Health Palliative Care Abstracts are invited for the 7th International Public Health Palliative Care Conference: Democratising caring, dying and grieving: participation, action, understanding and evaluation. The deadline for submission of abstracts is 15 January 2022. Advance care planning for emergencies in care homes: meaningful conversations and trusting relationships matter This editorial in Age and Ageing by Anne Finucane, Bruce Mason and Kirsty Boyd looks at advance care planning in care homes. (Ref: https://doi.org/10.1093/ageing/afab159) Community end of life care during the COVID-19 pandemic: findings of a UK primary care survey This paper in BJGP by Sarah Mitchell, Phillip Oliver, Clare Gardiner, Helen Chapman, Dena Khan, Kirsty Boyd, Jeremy Dale, Stephen Barclay and Catriona R Maryland aims to understand the views of GPs and community nurses providing end-of-life care during the first wave of the COVID-19 pandemic.
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Patient/Family perspective |
The ‘work’ of managing medications when someone is seriously ill and dying at home: A longitudinal qualitative case study of patient and family perspectives This paper by Eleanor Wilson, Glenys Caswell and Kirstian Pollock explores patient and family caregivers’ views of managing medications when someone is seriously ill and dying at home. (Ref: https://doi.org/10.1177/02692163211030113) |
SPPC News |
Every Story's Ending Every Story's Ending is a new report by the Scottish Partnership for Palliative Care. It explores what can be done in Scotland to improve people’s experiences of serious illness, dying and bereavement. Aiming to influence future Palliative and End of Life Care strategy development, it identifies priorities and recommends actions that will make a positive difference to experiences of living with serious illness, dying and bereavement in Scotland. The full report can be downloaded here: Every Story's Ending: Proposals to improve people's experiences of living witih serious illness, dying and bereavement in Scotland - FULL REPORT A 10-page summary of the report can be downloaded here: Every Story's Ending: Proposals to improve people's experiences of living witih serious illness, dying and bereavement in Scotland - SUMMARY VERSION Watch this 5-minute film to find out more about Every Story's Ending: Every Story's Ending Short Film A recording of the launch event, including a short speech and Q&A with Maree Todd MSP, Minister for Public Health, Women’s Health and Sport, is also now available: recording of the launch of Every Story's Ending. SPPC Poster Parade 2021 Following its success last year, this October we bring you the SPPC Virtual Poster Parade. The Parade will showcase practice, research and innovation from across Scotland and beyond. To view the posters, check out the SPPC website and Twitter, and remember to vote for your favourite by 23 October. The Parade will culminate in a series of presentations and Q&A on 28 October, 3pm-5pm. Save the Date - SPPC Annual Conference 2022 We are planning the return of the (face to face) SPPC Annual Conference for Thursday 31st March 2022. A lot can happen before then, but for now we are looking forward to welcoming you back in person to the Royal College of Physicians of Edinburgh. |
Other News |
The Future of Hospice Care in Scotland Hospice UK, in collaboration with the Scottish Hospice Leadership Group, has launched a new report on The Future of Hospice Care in Scotland which sets out the unique contribution of Scottish hospices, the key role the sector has played during the COVID-19 pandemic and how hospices are working in partnership with the wider health and social care system to support Scotland’s recovery and adapt to meet future challenges and the rising need for palliative care. Arts in Palliative Care The arts team at St Columba’s Hospice Care is holding its next ECHO network meeting for the Arts in Palliative Care on 3 November at 3pm. This online meeting is open to arts therapies, art practitioners and any other professional who is interested to learn more about the roles of the arts in palliative care. Participation is free but registration is required. To register, please email: echo@stcolumbashospice.org.uk Catalysts for Change Programme - grants available The Queen’s Nursing Institute Scotland (QNIS), in partnership with The National Lottery Community Fund, has announced the opening of applications for the latest Catalysts for Change programme. Grants are available of up to £5,000 to help community nurses and midwives in Scotland explore short-term initiatives that prevent, reduce, or overcome health inequalities. The closing date is Thursday 28th October. |
Events |
Poster ParadeOrganised by Scottish Partnership for Palliative Care. 28 October 2021, 3pm-5pm, online. More information is available here: weblink. Save the Date - SPPC Annual Conference 2022We are planning the return of the (face to face) SPPC Annual Conference for Thursday 31st March 2022. A lot can happen before then, but for now we are looking forward to welcoming you back in person to the Royal College of Physicians of Edinburgh. Being Homeless at the End of Life' webinarOrganised by NHS Education for Scotland. Wednesday 22 September 2021, 5pm, online. More information is available here: weblink. Pregnancy loss and the death of a babyOrganised by Child Bereavement UK. 22 September 2021, 9am, online. More information is available here: weblink When a child dies: supporting parents and familiesOrganised by Child Bereavement UK. 23 September 2021, 2pm, online. More information is available here: weblink Creative ways of working with bereaved childrenOrganised by Child Bereavement UK. 28 September 2021, 2pm, online. More information is available here: weblink Effective non medical prescribing in end of life care.Organised by Healthcare Conferences UK. 29 September 2021, online. More information is available here: weblink. Palliative and end of life care for people who use drugsOrganised by the Drugs Research Network Scotland. Thursday 30 September, 2pm, online. More information is available here: weblink. The ReSPECT Evaluation: Moving Forwards28 September 2021, 1pm, online. At this event the ReSPECT study team will present the key findings for the evaluation of ReSPECT in acute hospitals. There will also be speakers from both Resuscitation Council UK and Compassion in Dying, and an opportunity to ask questions. You can register to attend by emailing respect@warwick.ac.uk Improving Adult Bereavement Care, Support & ServicesOrganised by Healthcare Conferences UK. 6 October 2021, online. More information is available here: weblink. Arts Symposium Organised by St Columba's Hospice Care. 20 October 2021, online. More information is available here: weblink. Arts in Palliative CareOrganised by St Columba's Hospice Care. 3 November, 3pm, online. More information is available here: weblink and register at: echo@stcolumbashospice.org.uk Scottish Government engagement/consultation event - palliative care and the National Care Service Scottish Government are holding an engagement/consultation event focusing on palliative care and the establishment of the National Care Service on Wednesday 20 Oct, 3-4pm. If you are able to attend the session please contact Laura Martin laura.martin2@gov.scot for further information and TEAMs meeting link. Completion of the Medical Certificate of Cause of Death webinar Organised by NHS Education for Scotland. Tuesday 26 October 2021, online. More information and booking is available here: weblink NES Bereavement Education Conference 2021: The Changing Face of Bereavement: Providing care and maintaining our own wellbeing during the pandemicRegistration is now open for the Bereavement Education Conference on Wednesday 24th November 2021, online. More information is available here: weblink Democratizing caring, dying and grieving: participation, action, understanding and evaluation.7th International Public Health Palliative Care Conference, 20-23 September 2022, Bruges, Belgium. More information is available here: weblink |
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