Scottish Partnership for Palliative Care

Welcome to Update, a monthly roundup of news relevant to palliative care in Scotland, brought to you by the Scottish Partnership for Palliative Care.

Policy

National Review of Targets and Indicators for health and social care

The Scottish Government has published a National Review of Targets and Indicators for health and social care, led by Professor Sir Harry Burns. Palliative and end of life care are covered on pages 28-29.

The 2018 GMS Contract in Scotland

The Scottish Government has published The 2018 GMS Contract in Scotland, providing information about the changes they propose to effect in regulations.

COPD Guide

The Scottish Government has published COPD Best Practice Guide, which is designed to provide healthcare professionals and patients the opportunity to see how this condition could be best managed from the unscheduled care perspective so that individuals living with COPD can enjoy structured and better care that is safe, effective and person-centred at every point of the patient journey.

Making it Easier – a health literacy action plan for Scotland 2017-2025

The Scottish Government has published Making it Easier - a health literacy action plan for Scotland 2017-2025.

The NHSScotland Chief Executive's Annual Report 2016/17

The Scottish Government has published the NHSScotland Chief Executive's Annual Report 2016/17, which presents an assessment of the performance of NHSScotland in 2016/17 and describes key achievements and outcomes.

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Practice

Inaugural SPICT international conference

The SPICT international conference will take place on Friday 2 February 2018 at Edinburgh University. The conference will be an opportunity to:

  • Review the evidence base for the SPICT 2017
  • Demonstrate how SPICT is being used in the UK, Europe and across the world
  • Highlight innovations in patient identification and care planning using SPICT and related resources
  • Share experiences in research, development and education
  • Plan further developments and international collaboration
  • Review the evidence base for the SPICT™ 2017

The conference is designed for:

  • Clinicians from any discipline or specialty who is delivering palliative care in the community, care homes, hospitals or prisons in the UK or elsewhere
  • Health or care professionals who want to learn more about how to identify people for early palliative care and proactive care planning
  • Educators delivering training on palliative care and anticipatory/advance care planning
  • Researchers already using SPICT™ in their work or planning new projects
  • Teams translating SPICT to help promote early palliative care in their country
  • Managers looking to introduce SPICT™ in their service or organisation
  • Policy makers seeking to improve equity of access to palliative care
  • Representatives from patient support groups or charities promoting public awareness about supportive and palliative care

More information is available here: weblink.

Transition to adult services factsheet

Together for Short Lives has launched a new resource designed to help parents think about transition from children’s to adult services and the different elements that need to be planned. The Transition to adult services factsheet aims to empower parents and make the transition process feel as smooth as possible for everyone involved.

Sharing Current Scottish Practice

Palliative and End of Life Care in Scotland’s Prisons

This month on the SPPC blog, Gail Allan, Macmillan Palliative Care Coordinator for Prisons shares her reflections on palliative and end of life care in Scotland's prisons.

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Academic and Research

Scottish Palliative Care Research Forum

The next meeting of the Scottish Palliative and End of Life Care Research Forum will take place in Glasgow on the morning of 21 February 2018. The event will focus on:

  • Understanding methodology - an introduction to key terms used in research
  • Palliative and end of life care for multiple conditions
  • What will end of life care look like after 2021?
  • Community Palliative care – outcomes and money

Everyone interested is welcome, including clinicians, health and social care staff, policymakers, educationalists, researchers and data analysts.

Reflections on To Absent Friends

This article, published in Bereavement Care Journal, explains the rationale for initiating the To Absent Friends festival (TAF), provides an overview of TAF and gives case study illustrations of four different categories of activity: public; private; community and online.

Ref: To Absent Friends, a people’s festival of storytelling and remembrance Rebecca M Patterson, Robert J Peacock & Mark A Hazelwood. Bereavement Care Vol. 36 , Iss. 3,2017

National End of Life Care Intelligence Network

The December e-alert from the NEOLCIN is now available, providing information about the latest data tools and updates on end of life care.

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Public and Patient Experience

Home palliative care works: but how? A meta-ethnography of the experiences of patients and family caregivers

This study explored patients and family caregivers' experiences with home palliative care services, in order to identify, explore and integrate the key components of care that shape the experiences of service users.

Ref: Sarmento VP, Gysels M, Higginson IJ, et al Home palliative care works: but how? A meta-ethnography of the experiences of patients and family caregivers BMJ Supportive & Palliative Care 2017;7:00.

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Scottish Partnership for Palliative Care News

CHANGE OF DATE - SPPC Annual Conference 2018

Due to unforeseen additional renovation work at the venue, we've had to change the date of next year's Scottish Partnership for Palliative Care Annual Conference. It will now take place Wednesday 28th November 2018 at the Royal College of Physicians of Edinburgh. (Not 10th October as previously advertised.)

Everyday Compassion: Supportive responses to dying and bereavement by schools, neighbourhoods and workplaces

The Scottish Partnership for Palliative Care and Good Life, Good Death, Good Grief are hosting a major national conference to showcase and explore current thinking and practice relating to public health palliative care in Scotland. Bringing together experts from across Scotland and the UK, it will be a chance to explore this diverse field from various angles, including sessions focusing on:

  • Compassionate Communities
  • Death education and bereavement support in schools
  • My Power of Attorney Campaign
  • Health Inequalities

The programme will feature a high quality line-up of plenary speakers and provide those working in the field with an opportunity to network and share their work with a national audience. The event takes place on Wednesday 25th April 2018 at Renfield St Stephen Centre, Glasgow.

Tickets, priced £20, can be booked here.

SPPC Review of Membership

SPPC is in the process of reviewing its membership arrangements. The aim of the review is to ensure that our membership criteria are broad and inclusive, reflecting the diversity of organisations involved in improving people’s experiences of death, dying and bereavement, including the improvement of palliative and end of life care. Following further consultation any changes will be put to a General Meeting of members in the first quarter of 2018.

Dying Matters and Good Life, Good Death, Good Grief

Following the recent merger of Hospice UK and Dying Matters, we thought it helpful to provide clarification about the respective geographical remits of Dying Matters and Good Life, Good Death, Good Grief going forward:

Good Life, Good Death, Good Grief is an initiative of the Scottish Partnership for Palliative Care, and promotes more open and supportive attitudes and behaviours relating to death, dying and bereavement in Scotland. Dying Matters and Byw Nawr have similar aims, working over England and Wales. Dying Matters and Byw Nawr remain active in the newly merged Hospice UK/National Council for Palliative Care, and their geographical remit remains unchanged.

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Other News

Fragile Foundations

Scottish Care has published Fragile Foundations: Exploring the mental health of the social care workforce and the people they support.

Human rights, dementia and social care

Scottish Care has published two ‘Care Cameos’ exploring human rights - one entitled 'Human rights and dementia' and written by Anna Buchanan, Programme Director at Life Changes Trust; the other entitled ‘Human Rights and Social Care’ by Judith Robertson, Chair of the Scottish Human Rights Commission.

Training on human rights in end of life care

Sue Ryder, in collaboration with the British Institute of Human Rights is providing 'What matters to me?' training on human rights in end-of-life care. They aim to hold a free four-hour workshop, especially designed for the Scottish policy context, in Stirling on 31 January 2018. This will be subject to numbers. If you are interested in finding out more or booking a place please get in touch.

Spiritual Care Matters course

Spiritual Care Matters is an online learning course designed to promote, recognise, respect and support the spiritual well-being of older people. The course is an introduction to spiritual care, exploring how spiritual care is defined, what it means in practice and why it matters. The course uses Open Badges to recognise learning for ongoing staff development. Spiritual Care Matters was developed by Faith in Older People and is based on the publication Spiritual Care Matters – An Introductory Resource for all NHS Scotland Staff (NHS Education Scotland, 2007).

New Tayside Palliative Care Network

The Macmillan Tayside Palliative and End of Life Care Network was launched in October. The vision is that the Network will work in partnership, with and for those who are facing serious illness, those who are near the end of life and those who are dying so that they have the care they need, when and where they need it. The Network brings together individuals and organisations who wish to see good end of life care and good palliative care accessible to all in Tayside – where and when it’s needed. The Network will cross all settings, whether someone is living at home, in a hospice, in a care home, in a hospital ward, in A&E or in intensive care. It will relate to children’s and adult palliative care irrespective of age, stage, diagnosis or prognosis.

Marie Curie event: Is realistic medicine realistic for palliative care?

Marie Curie has made available a blog about and links to videos of the three key speakers and the Q&A session at its recent event Is realistic medicine realistic for palliative care:

A Children in Scotland Evaluation of the Diana Children’s Nurse Service

CHAS and Children in Scotland have published a report which presents the findings from a DCN service evaluation that took place between December 2015 and October 2017.

Hospice Care in the UK 2017

Hospice UK have published Hospice Care in the UK 2017: from numbers to insight.

Health Information Services annual report

NHS 24 has published its Annual Report outlining its key achievements for 2016/17 and strategic priorities for 2017/18.

In the media

The Courier: Network for better end of life care launched in Dundee

Evening Telegraph: New palliative care network launched in Dundee

The Guardian: UK hospices warned against joint venture with undertaker tycoon

The Herald: Child palliative care 'Diana' nurses should be extended across Scotland

The Herald: Warnings of elderly care crisis as a third of vital care home vacancies go unfilled

The Scotsman: Scottish care bosses warn sector may soon cease to exist

STV News: Almost one-third of care home nursing posts empty

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And Finally...

In each edition of Update we try to end with something a little bit thought-provoking or different...

The Reluctant Planner's Guide to Death and Dying

Good Life Good Death Good Grief's Development Manager, Robert Peacock, isn't well-prepared for death. In this blog, he intends to set that straight. Over the coming months, he is going to get his affairs in order. He is going to seek advice on what to do and when and how, and then he is going to do something about it, all the while hoping that none of it is needed for some time yet. Join him as he writes about the experience...

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Courses and Events

CHANGE OF DATE - SPPC Annual Conference 2018

Due to unforeseen additional renovation work at the venue, we've had to change the date of next year's Scottish Partnership for Palliative Care Annual Conference. It will now take place Wednesday 28th November 2018 at the Royal College of Physicians of Edinburgh. (Not 10th October as previously advertised.) We welcome ideas of topics and speakers for the programme – please get in touch if you would like to make a suggestion.

Care of Dying Adults in the last days of life: Improving care and ensuring adherence to the NICE National Quality Standard

Organised by Healthcare Conferences UK. Monday 15 January 2018, London. More information is available here: weblink.

Priorities for primary care in Scotland - best practice, integration and the new GP contract

Organised by Scotland Policy Conferences. 17 January 2018, Edinburgh. More information is available here.

Getting the Right Information Every Time

Organised by NHS Scotland and the Scottish Library & Information Council. 26 January 2018, Glasgow. More information is available here: weblink.

Supporting the needs of carers of those with a terminal illness

Organised by Marie Curie, Macmillan and the Scottish Government. 1 February 2018, Glasgow. More information is available here: weblink.

Training on human rights in end of life care

Sue Ryder, in collaboration with the British Institute of Human Rights is providing 'What matters to me?' training on human rights in end-of-life care. They aim to hold a free four-hour workshop, especially designed for the Scottish policy context, in Stirling on 31 January 2018. This will be subject to numbers. If you are interested in finding out more or booking a place please get in touch.

Babies with an uncertain future

Organised by Child Bereavement UK. 1 February 2018, London. More information is available here: weblink.

Inaugural SPICT International Conference 2018: Changing practice, promoting research and learning together

2 February 2018, University of Edinburgh. More information is available here: weblink.

Launch event for Making it Easier

Organised by Scottish Government. 8 February 2018, Dundee. More information is available here: weblink.

Improving Co-ordination, Improving Lives

Organised by HIS iHub. 22 February 2018, Edinburgh. More information is available here: weblink.

Non-Medical Prescribing for Pain

Organised by Health Care Conferences UK. 2 March 2018, London. More information is available here: weblink.

Towards evidence based compassionate care

15-16 March 2018, Bournemouth International Centre. More information is available here: weblink.

Supporting parents through pregnancy loss and the death of a baby

Organised by Child Bereavement UK. 18 April 2017, Aberdeen. More information is available here: weblink.

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