Scottish Partnership for Palliative Care: Update

Welcome to Update, a monthly roundup of news relevant to palliative care in Scotland, brought to you by the Scottish Partnership for Palliative Care.

Policy

Strategic Framework for Action for palliative and end of life care

The SPPC has compiled an update relating to implementation of the Scottish Government Strategic Framework for Action on Palliative and End of Life Care.

Health and Social Care Partnership Strategic Plans

The Health and Social Care ALLIANCE have published a document which collates together information and analysis of Health and Social Care Partnership's Strategic Plans. The document is called Integration Arrangements Spreadsheet and is available on the ALLIANCE website.

Scottish Government review of targets

Health Secretary Shona Robison has announced that the Scottish Government is to take forward a review of national NHS targets, and review the number, structure and regulation of health boards and their relationship with local councils. More information is available in the Scottish Government press release, and in the transcript of the Scottish Parliament debate Taking forward Scotland: Health which took place on 7 June.

Survey seeks feedback on Scottish Palliative Care Guidelines

HIS are currently undertaking a survey, seeking feedback on people's experiences of using the Scottish Palliative Care Guidelines in practice within NHSScotland. They are requesting that people participate in the survey to share what works well, what needs rethinking and what is out of date. Responses will inform an update of the guidelines proposed for 2017. Take part in the survey

RCN measuring success report

The Royal College of Nursing has published Measuring Success: Principles for a new approach to improving health and wellbeing. The paper delivers the RCN’s commitment to develop principles for a new approach to measuring success, which focuses on outcomes for people who need to use services and on sustainable improvement across health and wellbeing services.

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Practice

Hoping, coping and talking about planning ahead

In this blog published by the GMC, Dr Kirsty Boyd, Palliative Care Consultant for NHS Lothian talks about her experiences of speaking with patients and families about future care planning and what she has learned from her research and teaching about communication.

GMC launch of Mental Capacity Decision Support interactive tool

The GMC have launched an interactive tool designed to help healthcare professionals decide what to do when they doubt a patient’s capacity to make decisions about their own care.

Exploring the importance of creative activity to palliative care

This month, the SPPC blog highlights the work of the creative arts service at the Prince and Princess of Wales Hospice.

Poster abstracts of the month

This month the SPPC Sharing Scottish Practice Blog focuses on five posters displayed at the 2015 SPPC annual conference:

The SPPC Sharing Current Scottish Practice blog provides an opportunity for people to share examples of current Scottish palliative care practice that might be of interest to the palliative care community more widely. If you know of work underway that might be relevant for sharing on our website, please get in touch.

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Academic and Research

Call for Posters: SPPC Conference

We have launched a call for Posters for the SPPC Annual Conference. The closing date for submissions is 22 August 2016.

How integrated are neurology and palliative care services? Results of a multicentre mapping exercise

A new study published in BMC Neurology has found wide variation in the integration between neurology and specialist palliative care services across England and Wales. The study, which involved mapping the levels of connection and integration of neurology and palliative care services at eight centres in England and Wales, identified variation between different diseases as well as between centres.

New RCGP Marie Curie fellowship in palliative and primary care

The Royal College of General Practitioners (RCGP) and Marie Curie have announced a new fellowship in palliative and primary care, offering up to £40,000 to the successful GP. The aim of the new fellowship is to bring palliative and end of life care to the forefront of primary care research and to identify and support a future leader in the field. The call for applications will close on 31 July 2016. For more information about the RCGP Marie Curie Palliative Care Research Fellowship please visit the RCGPs website or contact the Scientific Foundation Board by email or on 020 3188 7594.

Research Forum

The palliative and end of life care Research Forum met on 6 May, and notes from the meeting will be available shortly. It is planned that the next meeting will take place on 30 August 2016 at the University of Glasgow (Gilmorehill campus, University Avenue), and focus on policy relevant research and disseminating it to people who need to know. To get involved or for more information email Scott Murray or Bridget Johnston.

Internship opportunity at Scottish Government

The Scottish Government are seeking an Intern to look at evidence and analysis on palliative and end of life care. The closing date for applications is 20 July, and details can be accessed on page 12 of this document.

Geographic variation of inpatient care costs at the end of life

The aim of this study was to investigate whether geographic inequalities in mortality also translate into differences in costs incurred for the last admission to hospital prior to death.

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Public and Patient Experience

Hiding who I am

Marie Curie recently published Hiding who I am, the reality of end of life care for LGBT people, which explores the experiences of LGBT people towards the end of life.

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Web News

New resources from NES

NHS Education for Scotlandhas launched a range of new materials, designed to support health and social care professionals in delivering care to patients, families and carers before, at and after death. These include:

- Re-launched Support Around Death (SAD) website hosting educational resources, links and information

- Newly developed community of practice, an online discussion/ networking forum for those who work with those who are bereaved in Scotland

- A suite of new animated educational films for healthcare professionals, which are all available on the SAD website or via the following links

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Scottish Partnership for Palliative Care News

Call for posters

Are you involved in an interesting project or in an area of work that you would like to discuss with or show to others in Scotland with an interest in palliative care? Why not apply to display a poster of your work at this year's SPPC Annual Conference?

The annual poster exhibition is an essential part of learning and sharing best practice at the conference. If you are interested in presenting a poster to be part of the exhibition, please contact Pauline Britton for a proposal form for completion. The closing date for submissions is 22 August 2016.

Death Awareness Week - Survey and Report

We are currently seeking feedback on people's experiences of Death Awareness Week Scotland, which took place 8-15 May 2016.If you can spare 3 minutes to fill in an online survey, we'd be interested to hear your thoughts. We are keen to hear from people who participated in awareness week, and also from those who did not. A summary report relating to awareness week activity is available here: Death Awareness Week Scotland - Summary Report.

SPPC Conference

We are pleased to announce that Professor Myra Bluebond-Langner will be speaking at our conference on 22 September 2016. Myra is True Colours Chair in Palliative Care for Children and Young People at University College London, Institute of Child Health. She will discuss using research to increase understanding of the illness experience, as a basis for reducing suffering, drawing on work from paediatric palliative care.

We are also pleased that Dr Ros Scott, Honorary Research Fellow University of Dundee and Stewart Wilson, Chief Executive at Cruse Bereavement Care have agreed to host a workshop on volunteering and bereavement. It is suggested that 90% of bereavement support is delivered by the voluntary sector of which 80% is given by volunteers. Bereaved people often say that friends, family and colleagues avoid talking to them about their loss. Indeed sometimes people will cross the road to avoid engaging with them. So what is it that motivates people from communities to volunteer to be alongside others at such a difficult time in their lives and do they really make a difference? This session will explore these questions, drawing on the findings from a small pilot study and the lived experiences of community bereavement volunteers.

Myra, Ros and Stewart join a high quality line-up which includes Dr Catherine Calderwood, Professor Charles Normand and Professor Brendan McCormick. For more details and to book a place, please visit our website. Discounts are available for SPPC members and group bookings.

Strengthening public, patient, carer and family voices

The SPPC is establishing a new group to explore appropriate and meaningful ways of strengthening public, patient, family and carer voices within the field of palliative and end of life care policy and practice. The group aims to produce a report on these issues by December 2016.

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Other News

Scottish Working Group on Funeral Poverty

A new Working Group has been set up to look at funeral poverty in Scotland. A website has been established to provide information about these issues and to offer a forum for those interested in discussing the causes and solutions to Funeral Poverty.

Let's Talk About Palliative Care

The All Ireland of Hospice and Palliative Care has published the Let's Talk About palliative care survey report, which shares the findings of a survey which had input from 528 people across the island of Ireland. A short animated film and an infographic about the survey are also available.

Circle of Life event

Plans are being made to hold an exhibition in Glasgow, to showcase the work of artisans and small companies who work sensitively with birth, life and death issues. A not-for-profit endeavour, The Circle of Life will take place in Glasgow Royal Concert Hall, on 30th September 2017. If you are interested in being involved, get in touch with Gilly Lockhart for more details.

PACE - Palliative Care for Older People in care and nursing homes in Europe

PACE is a European funded project comparing the effectiveness of palliative care for elderly people in care or nursing homes in Europe. It aims to advise policy-makers on optimal palliative care practices. PACE compares the effectiveness of health care systems with and without formal palliative care structures in care or nursing homes in 6 EU countries (Belgium, the Netherland, Italy, Finland, Poland, United Kingdom), and investigates the impact of a health service intervention ‘Route to Success’ aimed at integrating palliative care in care or nursing homes' structures, on patient, family and staff outcomes and on cost-effectiveness in a cluster controlled trial.

Based on its results, PACE will develop tools to assist practitioners and policy and decision-makers to make evidence-based decisions regarding optimal palliative care practices in care or nursing homes. More information is available here: weblink or sign up for the newsletter here: newsletter.

In the media

The SPPC does not undertake a comprehensive media monitoring service. Listed below are some of the stories relevant to palliative and end of life care that have appeared in the media over the last month. For more media coverage relating to palliative and end of life care, check out the eHospice website.

The Scotsman: Lizzy Buchan: Talking about death only way to remove its sting
University of Glasgow End of Life Studies: A hospice visit reveals the ‘noun’ and the ‘adjective’

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And Finally...

AND FINALLY...

...in each edition of Update we try to end with something a little bit thought-provoking or different...

Are you interested in encouraging care at home before and after death, and promoting thoughtful, affordable funerals? If so, perhaps you'd like to be involved in the establishment of Pushing Up the Daisies, a brand new Scotland-wide network aiming to provide support and resources around these issues.

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Courses and Events

Bookings open for SPPC Annual Conference 2016

Booking is now open for the SPPC Annual Conference, which will take place will take place on 22 September 2016 at the Royal College of Surgeons of Edinburgh.

The Cairdeas Palliative Care Trust Annual Gathering

26 June 2016, Kirkintilloch Baptist Church. For more information contact Mhoira Leng.

Heaven for Real? Significant Implications of Near Death Experiences

29 - 31 July 2016, Winchester. More information is available here: weblink

Hurt, Healing and Hope Conference

(Organised by the Prince & Princess of Wales Hospice.) 21 September 2016, Glasgow. More information is available here: weblink

Strathcarron Hospice Annual Conference: New Directions In Palliative Medicine - Living with Dying: Challenges Towards the End of Life

29 - 30 September 2016, Polmont. More information is available here: weblink.

Social Aspects of Death, Dying and Bereavement

(Organised by the International Work Group on Death, Dying and Bereavement) 5 November, Glasgow. More information is available here: weblink

Hospice UK Annual Conference – ‘People, Partnerships and Potential’

16 to 18 November 2016, Liverpool. More information is available here: weblink.

Let’s talk about end of life care

(Organised by the RCN and the National Council for Palliative Care with support from the SPPC.) Wednesday 30 November, Glasgow. More information is available here: weblink.

Effective Non-Medical Prescribing in End of Life Care

(Organised by HC-UK Conferences) Friday 16 September 2016, London

More information is available here: weblink.

St Andrew’s Hospice courses

For more information about any of the courses below, please contact Christine Reaoch Education Secretary, St Andrew’s Hospice, tel: 01236 772017

Communication, Loss Grief and Bereavement

16-23 June 2016; 9 – 16 September 2016;17 - 24 October 2016; 7 – 14 November; 9 - 16 December

Introduction to Spirituality in Health Care

6 – 13 September 2016; 4 – 11 November

End of Life Care

6 October 2016

Breaking Bad News

17 November 2016

Communication in Crisis

9 November 2016

Spirituality in Health Care

4 October - 8 November 2016

Palliative Care: Principles of Practice

28 September - 2 November 2016

Advanced Therapeutic Communication Skills - Using Personality Type

23 – 30 September 2016

Managing Challenging Behaviour

23 November 2016

Palliative Care for Health Care Assistants

7 – 14 October 2016

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