Scottish Partnership for Palliative Care: Update

Welcome to Update, a monthly roundup of news relevant to palliative care in Scotland, brought to you by the Scottish Partnership for Palliative Care.

Policy

Agreement reached to dismantle QOF

The Scottish Government has announced that it has reached an agreement with the British Medical Association (BMA) Scotland, that will see the removal of all remaining Quality Outcome Framework (QOF) points from the Scottish GP contract from April 2016.

Chief Medical Officer's Annual Report

The Chief Medical Officer for Scotland has published her annual report for 2014-15. Entitled Realistic Medicine, it includes a discussion of people's 'experience of death' and the potential for inappropriate interventions towards the end of life.

Report of the National Committee on Infant Cremation

The Scottish Government has published a formal report from the National Committee on Infant Cremation on its first year of progress against the 64 recommendations of the Infant Cremation Commission.

BMA End of Life Care Essentials: A question of ethics

The BMA have published reports on their engagement exercise and research looking at end-of-life care, and attempting to gauge opinion on the potential impact of physician assisted dying.

Health and Sport Committee Inquiry into Palliative Care

At its meeting on 26 January, the Scottish Parliament Health and Sport Committee took evidence on the Scottish Government Strategic Framework for Palliative Care and its response to the Committee's 15th report (2015) We need to talk about Palliative Care from Shona Robison, Cabinet Secretary for Health, Wellbeing and Sport, Janice Birrell, Senior Policy/Implementation Manager, and Professor Craig White, Divisional Clinical Lead, Chair, National Advisory Group for Palliative and End of Life Care, Scottish Government.

Audit Scotland report on Health and Social Care Integration

Audit Scotland have published a report on Health and Social Care Integration.

Management of deaths in the community

The Scottish Government has issued a letter (SGHD/CMO(2016)2) providing guidance to clarify the roles and responsibilities of individuals and organisations in the management of deaths in the community.

Local Delivery Plan Guidance 2016/17

The Scottish Government has published NHSScotland local delivery plan guidance 2016-17. This includes the statement that:

'The LDP should set out how services will deliver person-centred care. This may be done with reference either to:

  • How Boards will deliver a positive care experience in accordance with the five 'must do with me' principles of care: What matters to you? Who matters to you? What information do you need? Nothing about me without me, and service flexibility; or
  • The Strategic Framework for Action on Palliative and End of Life Care.'

Consultation: Development of Emergency Care and Treatment Plan

A consultation has been launched on a draft Emergency Care and Treatment Plan (ECTP) and associated documents.

The purpose of the ECTP is to record a summary of decisions about what care and treatment a person would or would not want to receive, if their health deteriorates and they are unable to make those choices at the time. The decisions recorded on the form should provide immediate information to guide health professionals in an emergency.

It aims to ensure that each individual receives the best possible treatment for their specific situation in any setting (e.g. their home, nursing home, hospital, hospice, or during an ambulance journey). The consultation ends on Monday 29 February, and can be accessed here: ECTP Consultation

Consultation on NICE guideline for supportive and palliative care in adults
The National Institute for Health and Care Excellence (NICE) is inviting comments on the draft scope for its guideline for supportive and palliative care in adults. The draft scope defines what the guideline will and will not cover. The deadline for responses is 29 January 2016.

New resources on transforming end of life care in acute hospitals (England)

NHS England has published a revised and updated guide to transforming end of life care in acute hospital settings. The route to success 'how to' guide is designed to offer practical advice and support for frontline clinicians and leaders for the work required to transform end of life care in acute hospitals.

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Practice

Bereavement following pregnancy loss and the death of a baby

Cruse Bereavement Care, Sands and NHS Scotland have developed a new e-learning resource, Bereavement following Pregnancy Loss and the Death of a Baby, for anyone working with pregnant women and new parents. It is designed to be particularly relevant to midwives, neonatal nurses, obstetricians, paediatricians, health visitors, maternity support workers and students.

Conversations with young people with life-limiting conditions

Together for Short Lives has published Talking with your child about their life-limiting condition, a factsheet which aims to aims to offer some practical advice to parents about how to talk to a child abot their illness, and address some common worries.

Care to Learn Training Modules

The National Council for Palliative Care in England has recently revised and updated its Care to Learn training programme. Care to Learn is designed to help staff improve end of life care. It provides an introduction to good practice, and is flexible so that it can be tailored to each individual learner, organisation or locality. It is aimed at Health Care Assistants and direct care staff across all settings including hospitals, hospices, care homes, the individual's home or in housing schemes. Qualified nursing staff moving into end of life care for the first time will also benefit from using the programme.

New NICE guideline on caring for dying adults (England)
The National Institute for Health and Care Excellence (NICE) has published new guideline on care of dying adults in the last days of life. The guideline is intended for health and social care staff, commissioners and unpaid carers of people at the end of life. It covers the clinical care of adults (18 years and over) during the last 2 to 3 days of life.

Sharing Current Scottish Practice

This month our Sharing Scottish Practice blog features five posters displayed at the 2015 SPPC annual conference:

The SPPC blog provides an opportunity for people to share examples of current Scottish palliative care practice that might be of interest to the palliative care community more widely. If you know of work underway that might be relevant for sharing on our website, please get in touch.

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Academic and Research

Palliative Care Research Forum

Work is underway to establish a Scottish Research Forum for palliative and end of life care. A meeting to discuss this will take place in the margins of the UK Palliative Care Congress 2016, at the Scottish Exhibition and Conference Centre in Glasgow. Any researcher or would be researcher is welcome to come along at 2pm on 11 March to put their views forward, in person or in writing. It is hoped that by the end of the meeting a 'shadow committee' will have been formed to move things forward. If you are unable to attend yet would like to contribute, please contact Prof Scott Murray or Prof Marie Fallon or Prof David Clark. It is planned that the Forum's inaugural seminar will take place on 6 May 2016 at a venue to be decided in Edinburgh. More information is available here: First steps towards a palliative care research forum in Scotland.

Research-led funding call - care in last year of life

The National Institute for Healthcare Research has released a research-led funding call, highlighting that they currently welcome welcome proposals relating to the organisation and quality of care in the last year of life. More information is available here: weblink

Marie Curie Annual Research Impact Report:

Marie Curie has published From research to policy and practice, a report highlighting the outputs and impact of their research over the last year.

International Congress on Palliative Care: Last Call for Abstracts

The deadline for submission of an abstract for oral presentation (workshop, proffered paper or research paper) at the International Congress on Palliative Care is 31 January 2016. More information is available here: weblink.

Call for abstracts: Modern Care of Older People

Abstracts are being sought from trainees working in any specialty for three 15 minute presentations within the Long term conditions: management outside of the hospital session at the forthcoming symposium on the theme Right care, right place, right time. Closing date for abstracts is Monday 8 February 2016. Further details are available here: weblink.

Improving primary palliative care in Scotland: lessons from a mixed methods study

Bruce Mason, Susan Buckingham, Anne Finucane, Peter Hutchison, Marilyn Kendall, Hazel McCutcheon,Lorna Porteous and Scott A. Murray

BMC Family Practice (2015) 16:176 DOI 10.1186/s12875-015-0391-x

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Web News

New palliative care newsletter

The Macmillan Pharmacy Service have recently launched a bi-monthly round-up of palliative care news and views for community pharmacy staff. Click here to access the newsletter, and scroll down to 'palliative care news bites'.

St Margaret of Scotland Hospice Education website

St Margaret of Scotland Hospice recently launched their new education website.

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Public/Patient Experience

Marie Curie report on the hidden costs of caring

Marie Curie has published The hidden costs of caring, a report on the issues facing unpaid carers, including the emotional costs of caring, the financial costs of caring and the loss experienced in bereavement when caring has come to an end.

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Scottish Partnership for Palliative Care News

Comedy Fundraiser at The Stand

The Stand Comedy Club in Edinburgh is organising a Benefit in aid of the Scottish Partnership for Palliative Care. The night will include five great comedy stand up acts, and all proceeds will go directly to the SPPC. Tuesday 19th April, doors open at 1930 - save the date and book your tickets here: weblink.

SPPC Annual Conference 2016: Keynote speaker announced

We are pleased to announce that Dr Catherine Calderwood, Chief Medical Officer for Scotland, will be giving a scene-setting keynote address at this year's SPPC Annual Conference. Dr Calderwood recently published her annual report for 2014-15. Entitled Realistic Medicine, it includes a discussion of people's 'experience of death' and the potential for inappropriate interventions towards the end of life.

The Annual Conference will take place on 22 September 2016 at the Royal College of Surgeons of Edinburgh. Further details will be announced as they become available.

National Dementia Dialogue

The SPPC has produced a response to the Scottish Government's National Dementia Dialogue 2015. The response can be viewed here: SPPC Response to Consultation: National Dementia Dialogue 2015: Have your say

Input to the planning of SPPC work

SPPC is now planning its work from April 2016 to March 2017 and we are keen to hear your views. How can SPPC membership (and the small SPPC staff team) have most impact? What would be your priorities for action? How can SPPC help to maximise the impact of the new Scottish Government Strategic Framework for Action? Send your ideas to Mark or call 0131 272 2735. SPPC's current strategy (2014-17) can be read here: SPPC Strategy 2014-17 and our work plan for the year just ending can be read here: SPPC work plan 2015-16.

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Other News

Palliative Care Congress in Glasgow

The programme has now been finalised for the 11th Palliative Care Congress, Rediscovering Holism: the future for Palliative Care, which will take place in Glasgow from 9 - 11 March 2016. More information is available here: weblink

Cross Party Group on Palliative Care

The next meeting of the group will take place on: Wednesday 10 February 2016 in Committee Room 5, at 5.45pm. The meeting will provide an opportunity to explore and discuss Commitment 9 of the Scottish Government's Strategic Framework for Action for Palliative and End of Life Care. Please e-mail Pauline if you would like to request a place at this meeting.

Alzheimer Scotland: Advanced Dementia Practice Model

Alzheimer Scotland has launched its latest policy report, Advanced Dementia Practice Model: understanding and transforming advanced dementia and end of life care. The report aims to set out an integrated and comprehensive, evidence-based approach to supporting people living with advanced dementia.

End of life care in acute hospitals eBook

NHS England has published Working Together to Transform end of life care in acute hospitals, an eBook which contains presentations and useful resources/contacts from their recent national conference.

In the media

The SPPC does not undertake a comprehensive media monitoring service. Listed below are some of the stories relevant to palliative and end of life care that have appeared in the media over the last month. For more media coverage relating to palliative and end of life care, check out the eHospice website.

BBC News: Hundreds die waiting for social care packages

BBC News: Health officials miss deadline to increase number of MND nurses

Courier: Five-year plan aims to widen access to palliative care for all

The Herald: Palliative care guidance required

Holyrood: Patients to get greater say in end-of-life care

Independent: Doctors need training on how to tell patients they are dying, report finds

The Scotsman: Comment: Reassuring move on palliative care

The Scotsman: Lesley Riddoch: Forget 'same old' for end of life care

Third force news: A good death will take more than a framework 

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And Finally...

...in each edition of Update we try to end with something a little bit thought-provoking or different. This month, how and when are you likely to die? An online simulation - enter your sex, race, and age. Each dot represents one of your simulated lives, and as each year passes, more of your simulated selves pass away...How will you die?

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Courses and Events

Comedy at The Stand

The Stand Comedy Club in Edinburgh is organising a Benefit in aid of the Scottish Partnership for Palliative Care. The night will include five great comedy stand up acts, and all proceeds will go directly to the SPPC. Tuesday 19th April, doors open at 1930 - save the date and book your tickets here: weblink.

Save the date: SPPC Annual Conference 2016

This year's Scottish Partnership for Palliative Care Annual Conference will take place on 22 September 2016 at the Royal College of Surgeons of Edinburgh. More details to follow.

Lymphoedema Specialist Practice

1 February 2016, Glasgow. For more information email or phone 0141 330 2972.

Lymphoedema Advanced Practice (University of Glasgow)

Course Commences 1 February 2016 with attendance in Glasgow dates 23- 24 March 2016. More information is available here: weblink.

Reconnecting to Compassion Conference

3 February 2016, Edinburgh. More information is available here: weblink

Sudden Death & Breaking Bad News Meeting the Challenges of Supporting Traumatically Bereaved Children & Families

4 February 2016, Glasgow. For more information contact Sarah Maynard: 01494 569055.

MSN Education Day

5 February 2016, Edinburgh.

Expected outcomes for the day:

  • Understanding of the strategic direction and priorities for children and young people's cancer care for the next 3 years
  • Understanding of how outcomes are being improved across specialties
  • Understanding of how success will be measured
  • Understanding of the role you can play in improving outcomes

Contact Lindsay Campbell for more information.

Cross Party Group in the Scottish Parliament on Palliative Care

10 February 2016, Edinburgh. More information is available here: weblink. Please e-mail Pauline if you would like to request a place at this meeting.

'People Power: Creating the Conditions for Change'

29 February 2016, Perth. For more information, please email or call 0141 404 0231.

Promoting Continence - putting theory into practice

22 February 2016, Dunblane Hydro. FREE. More information here: weblink

Integrating health and social care in Scotland

2 March 2016. More information is available here: weblink.

Grief & Bereavement in Schools - 'Let's Talk About It' Conference

7 March 2016, Stirling. More information is available here: weblink.

RCPE Symposium: Modern Care of Older People

16 March 2016, Edinburgh. More information is available here: weblink.

Rediscovering Holism: the future for Palliative Care

The 11th Palliative Care Congress, 9 - 11 March 2016, Glasgow. More information is available here: weblink

Highland Palliative Care Course: Living Until you Die - Crossing Boundaries in Palliative Care

15 & 16 March 2016, Inverness. Course details are available here: weblink

'Rehabilitation in palliative care: Supporting people to live actively until they die'

6 May 2016, Cumbernauld. More information is available here: weblink

Paediatric Continence Workshop

24 May 2016, Edinburgh. More information is available here: weblink

Priorities for palliative and end of life care in Scotland

2 June 2016, Edinburgh. More information is available here: weblink.

Strathcarron Hospice Annual Conference: New Directions In Palliative Medicine - Living with Dying: Challenges Towards the End of Life

29 - 30 September 2016, Polmont. More information is available here: weblink.

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