Briefings and consultations
The Marie Curie Policy team works closely with all UK governments to inform, influence and improve policies around end of life and palliative care.
Below you can download a range of parliamentary briefings and consultation responses prepared by the Policy teams in each nation.
United Kingdom
- Dying in Poverty: Budget 2022 briefing
- Policy interventions to alleviate poverty at the end of life – a cost/benefit analysis
- Poverty at the end of life in the UK: A survey of Marie Curie community nurses
- Excess deaths at home since the start of the covid-19 pandemic, Four Nations Methodology Briefing
- Making the State Pension available to all terminally ill people: What would terminally ill people be entitled to?
- The Cost of Living: A survey of Marie Curie Caring Services staff
Consultation responses:
- Reponse to the House of Lords Public Services Committee inquiry into Lessons from coronavirus
- Work & Pensions Committee inquiry into Universal Credit: the wait for a first payment (April 2020)
- DCMS Committee inquiry: Impact of COVID-19 on charity sector (April 2020)
- APPG Inquiry into legal definition of terminal illness (May 2019)
England
Parliamentary briefings:
- Access to Palliative Care Bill (February 2020)
- Access to Palliative Care Bill (June 2019)
- Continuing Healthcare (CHC) Adjournment Debate (July 2018)
- Government response to the Review of Choice in end of life care (July 2018)
- End of life care audit: Dying in Hospital (May 2016)
- Westminster Hall debate on barriers to dementia and Alzheimer's care (April 2016)
- Estimates Day debate on end of life care (February 2016)
- Backbench debate on the NHS and a social care commission (January 2016)
- Access to Palliative Care Bill committee stage (January 2016)
- Adjournment debate on palliative care (October 2015)
- Westminster Hall debate on funeral poverty (October 2015)
- The case for a Westminster Hall debate on access to palliative care (October 2015)
- Second Reading of the Assisted Dying (No. 2) Bill (September 2015)
- Palliative care in light of the Dying without Dignity report (June 2015)
Consultation responses:
- ICO consultation on the accountability toolkit (January 2020)
- Primary Care Netwrok Service Specifications (January 2020)
- Proposals to reduce ill health-related job loss (October 2019)
- ICO’s data sharing code of practice (September 2019)
- London's Health and Care Vision (August 2019)
- Support for the bereaved (May 2019)
- Implementing the NHS Long Term Plan (April 2019)
- National Data Guardian for Health and Social Care: a consultation on priorities (March 2019)
- Mental Capacity Act 2005 Code of Practice (March 2019)
- NHS Pension Scheme 2019 (January 2019)
- Health and social care and LGBT communities (October 2018)
- Consultation briefing on NHS Long Term Plan (October 2018)
- LGA Social Care Green Paper (September 2018)
- Regulatory fees of the CQC (July 2018)
- The Future of the NHS (July 2018)
- Charity Tax Commission (July 2018)
- Independent Healthcare Providers (July 2018)
- Regulation of a New Profession - Nursing Associates (July 2018)
- Personal Health Budgets and Integrated Personal Budgets for End of Life Care (June 2018)
- Dementia and Palliative Care (June 2018)
- Department for Work and Pensions: consultation on reforms to the Social Fund’s Funeral Expenses Payments scheme (August 2017)
- Department of Health: Medical Examiners and Reforms to Death Certification (June 2016)
- Evidence to an inquiry into living with heart failure (April 2016)
- Work and Pensions Committee’s inquiry into bereavement benefits (January 2016)
- Department for Business, Innovation and Skills’ Higher Education Green Paper (January 2016)
- Health Committee inquiry into the Comprehensive Spending Review (January 2016)
- NICE: improving supportive and palliative care (January 2016)
- NICE: motor neurone disease consultation (October 2015)
- NICE: future social care consultation (October 2015)
- NICE: care of the dying adult consultation (September 2015)
- PACAC Inquiry on Dying without Dignity (September 2015)
- NHS England’s consultation on the National Survey of Bereaved People (June 2015)
Scotland
Parliamentary briefings:
- Marie Curie Briefing: Charitable Hospice Care to Meet Future Need (December 2023)
- Marie Curie Briefing: Sustainable funding for hospice care: what should the future hold? (December 2023)
- Marie Curie Briefing for Dying in the Margins: Members Business Debate (November 2023)
- Marie Curie Briefing for Rural and Islands Housing Action Plan (October 2023)
- Marie Curie Briefing for Challenge Poverty Week (October 2023)
- Marie Curie SNP Conference briefing (October 2023)
- Dying in the Margins (May 2023)
- Marie Curie Debate Briefing: Mental Health (May 2023)
- Marie Curie Briefing: Dementia Strategy (March 2023)
- Marie Curie Briefing: Cost of Living Crisis and Scottish Budget (December 2022)
- Marie Curie Briefing: Scottish Government Debate - Population Needs (September 2022)
- Marie Curie Briefing: Scottish Labour Debate - Supporting Carers during the Cost of Living Crisis (May 2022)
- Marie Curie Briefing: Dying in the Cold; Being Homeless at the End of Life in Scotland (June 2021)
- Marie Curie Briefing: Palliative care need in Scotland is projected to increase by up to 20% by 2040 (February 2021)
- Marie Curie Briefing: The cost of unscheduled care at end of life (February 2021)
- Marie Curie & MND Scotland Briefing: Social Security Administration and Tribunal Membership (June 2020)
- Marie Curie Briefing: Member’s Debate: Immigration and Scottish Care Sector Briefing (March 2020)
- Marie Curie Briefing: Right to Die at Home (January 2020)
- Where people will die in Scotland in 2040 (December 2019)
- Disability Assistance Briefing (October 2019)
- Marie Curie Integration Briefing (October 2019)
- Transport (Scotland) Bill - Stage One Debate (April 2019)
- Marie Curie Great Daffodil Appeal Scottish Parliament Briefing (March 2019)
- Carers Allowance Supplement (February 2019)
- Scottish Government Debate: Building a Connected Scotland (January 2019)
- Carers – Carer Identification (January 2019)
- Carers – Care coordination and information (January 2019)
- Carers – Support with caring role (January 2019)
- Carers – Supporting carers own needs (January2019)
- Carers – Respite care (January 2019)
- Health and Care (Staffing) (Scotland) Bill (November 2018)
- Getting it Right for Carers Supporting Someone at the End of Life (November 2018)
- Marie Curie briefing: Building a Connected Scotland: Tackling Social Isolation and Loneliness Together (January 2018)
- Maire Curie-MND Scotland – Social Security Stage One Briefing (December 2017)
- Scottish Conservative Health Debate (November 2017)
- Labour Debate (November 2017)
- Green Party Debate: Carers and Social Care (April 2017)
- Obesity (February 2017)
- Health Inequalities (January 2017)
- Enough for everyone: Challenging inequities in palliative care (January 2017)
- Care Charges (December 2016)
- Funeral Poverty (November 2016)
- NHS in Scotland (November 2016)
- Scottish Government Debate on the Future of Social Security (November 2016)
- Mental Health (October 2016)
- Scottish Parliament Priorities (October 2016)
- Mental Health Education (September 2016)
- Delayed Discharges (September 2016)
- Older people in Scotland (September 2016)
- LGBT (June 2016)
- Glasgow (June 2016)
- Marie Curie Briefing SNP Conference Resolution, Session 4, Dementia Care
- Marie Curie Briefing SNP Conference Resolution, Welfare powers devolved to Scottish Parliament
- The reality of end of life care for LGBT people (June 2016)
- Marie Curie in Glasgow (June 2016)
- Dignity, Fairness and Respect in Disability Benefits debate (June 2016)
- Delivering a Healthier Scotland debate (June 2016)
- Social Security debate (March 2016)
- Argyll and Bute Delivering Choice Programme (February 2016)
- Carers (Scotland) Bill 2015
- Social isolation (January 2016)
- Scottish Labour: Health debate (December 2015)
- The Future of Delivery of Social Security in Scotland (November 2015)
- Children’s Grief Awareness Week (November 2015)
- Assisted Suicide (Scotland) Bill Stage One (June 2015)
- Carers Week 2015 (June 2015)
- Changing the conversation (June 2015)
Consultation responses:
- Marie Curie response to the Health, Social Care and Sport committee rural and remote inquiry (November 2023)
- Marie Curie response to the Scottish Government's Human Rights Bill (October 2023)
- Marie Curie response to the Health, Social Care and Sport committee call for evidence on healthcare in rural and remote areas (August 2023)
- Scottish Parliament Health, Social Care and Support Committee – National Care Service (Scotland) Bill (September 2022)
- Scottish Government – Health and Social Care Strategy for Older People (June 2022)
- Scottish Government – Cancer Strategy (June 2022)
- Scottish Government – Scottish Carer's Assistance (May 2022)
- Scottish Parliament Health, Social Care and Sport Committee – Inquiry into Health Inequalities (March 2022)
- Excess Deaths since the start of the Pandemic Inquiry – Scottish Parliament Covid-19 Recovery Committee
- Assisted Dying (Scotland) Bill Consultation (December 2021)
- Scottish Government – National Care Service (NCS) (November 2021)
- Marie Curie response to Covid-19 Inquiry Consultation
- Patient Safety Commissioner (June 2021)
- Renewing Scotland’s full potential in a digital world (December 2020)
- Scottish Affairs Committee – Welfare Policy (December 2020)
- Social Justice and Fairness Commission – Social Care (October 2020)
- Role of Scottish Social Security in Covid-19 Recovery (October 2020)
- Scottish Parliament: How well is the Care Inspectorate fulfilling its statutory roles? (August 2020)
- Scottish Labour – National Care Service (August 2020)
- Covid-19 follow-up to Health and Sport Committee Social Care Inquiry (July 2020)
- Draft Respiratory Care Action Plan (July 2020)
- Scottish Parliament Health & Sport Committee Social Care Inquiry (February 2020)
- Carers Strategic Policy Statement (December 2019)
- Social Security Committee Benefit Take-up Consultation (October 2019)
- Health and Sport Committee call for views: Social Prescribing of Physical Activity and Sport (August 2019)
- Welfare policy in Scotland inquiry (August 2019)
- Health and Sport Committee Review of Primary Care (August 2019)
- Falls and Fracture Prevention Strategy for Scotland (August 2019)
- Proposed Wheelchairs (Short-term access) (Scotland) Bill (June 2019)
- Disability Assistance Consultation (May 2019)
- Changing Places Toilets: Building Standards Consultation (May 2019)
- Timescales for adult carer support plans and young career statements for carers of terminally ill persons (April 2019)
- Draft National Action Plan on Neurological Conditions (January 2019)
- General Standards for Neurological Care and Support (December 2018)
- Funeral Costs (November 2018)
- Adult Social Care Reform (October 2018)
- A Culture Strategy for Scotland (September 2018)
- Funeral Expense Assistance Regulations (August 2018)
- Health and Care (Staffing) (Scotland) Bill (August 2018)
- Protection of Vulnerable Groups and the Disclosure of Criminal Information (July 2018)
- Adults with Incapacity Reform (April 2018)
- A Connected Scotland (April 2018)
- Scottish Labour NHS and Social Care Workforce Commission (April 2018)
- Scottish Liberal Democrats Social Care Consultation (April 2018)
- Miles Briggs MSP Member’s Bill: Free Personal Care for under-65s (October 2017)
- Consultation on draft regulations under the Carers (Scotland) Act 2016 – September 2017 (September 2017)
- Socio-economic duty (August 2017)
- Social Security (Scotland) Bill – Stage One (August 2017)
- Health and sport committee: draft budget 2018-19 (July 2017)
- Technology and Innovation in the NHS (July 2017)
- Feasibility study: free personal care for under-65s (July 2017)
- Homelessness inquiry (June 2017)
- Workforce Planning (March 2017)
- Engagement with H&SCPs (February 2017)
- Preventative agenda (February 2017)
- Consultation on the new National Health and Social Care Standards (January 2017)
- National Care Framework for Huntington’s Disease (December 2016)
- Grampian Cancer Strategy (October 2016)
- Consultation on Social Security in Scotland (October 2016)
- Scottish Health Survey Questionnaire (October 2016)
- Marie Curie Response: Mental Health Strategy in Scotland (September 2016)
- Demography of Scotland and implications for devolution (May 2016)
- Scottish Law Commission Report on Adults with Incapacity (April 2016)
- Next Mental Health Strategy (April 2016)
- Non-Residential Social Care Charges (January 2016)
- National Care Standards (December 2015)
- Health budget (November 2015)
- Health Improvement Scotland: sustainable high quality services (September 2015)
- The Future of Social Security in Scotland (August 2015)
- Health Improvement Scotland: Complex Nutritional Care (August 2015)
- Health (Tobacco, Nicotine etc. and Care) Bill (July 2015)
- Strategic framework for action on palliative and end of life care (July 2015)
- We need to talk about palliative care (July 2015)
- Scottish Partnership for Palliative Care Consultation (June 2015)
- Carers (Scotland) Bill: Call for views (April 2015)
- Burial and Cremation (April 2015)
Event Reports:
- Palliative Care in Scotland: Research into Practice (May 2017)
- Challenging Inequities in Palliative Care (October 2016)
Falls and Fracture Prevention Strategy for Scotland.
Wales
- Health and Social Care Committee Priorities for the Sixth Sened (September 2021)
- Welsh Government Race Equality Action Plan, Consultation Response (June 2021)
- Welsh Government Draft National Framework for Bereavement, Consultation Response (May 2021)
- Welsh Government Strategy for an Ageing Society, Consultation Response (March 2021)
- Welsh Government National Plan for Carers, Consultation Response (January 2021)
- Welsh Government Plan for Fuel Poverty consultation response (December 2020)
- Connected communities – Tackling loneliness and social isolation (January 2019)
- Student Support Arrangements - Marie Curie Response (July 2018)
- Proposed health board boundary change in Bridgend (March 2018)
- Marie Curie response to inquiry into rough sleeping in Wales (February 2018)
- Hospices and Palliative Care CPG - Inquiry response (December 2017)
- Public Services Ombudsman (Wales) Bill - A response from Marie Curie (November 2017)
- Consultation response - Transforming Care in the 21st Century (October 2017)
- Phase 2 implimentation of the Regulation and Inspection of Social Care (Wales) Act 2016 - Marie Curie response (August 2017)
- Statutory guidance for service providers and responsible individuals on meeting service standard regulations - Marie Curie response (July 2017)
- Services for the Future - Marie Curie Response (June 2017)
- Welsh Govt Cancer Delivery Plan Refresh - Marie Curie Response (September 2016)
- Regulation and inspection of social care act (December 2015)
- Minimum/Safe Nurse Staffing Levels Bill (October 2015)
- Assembly Debate on Palliative Care in Wales (September 2015)
- Assembly Debate on Dementia in Wales (June 2015)
- Assembly Debate on the Liver Disease Delivery Plan (May 2015)
Northern Ireland
Briefing documents
- Social Security (Terminal Illness) Bill (December 2021)
- Special Rules for Terminal Illness in social security law (January 2021)
- Tackling loneliness and building connections: Statement in response to COVID-19 (May 2020)
- Assembly motion: Special Rules for Terminal Illness in benefits law (September 2020)
Consultation responses
- Consultation on the DoH Budget 2023-24 EQIA
- Consultation response: Draft Programme for Government Outcomes Framework (March 2021)
- PIP assessment (April 2020)
- Review of business rates (November 2019)
- Breast assessment (August 2019)
- Stroke care (August 2019)
- Joint committee inquiry into welfare policy in Northern Ireland (June 2019)
- Funding Priorities for the 2018-2019 Budget: Health (September 2018)
- Personal Independence Payment and terminal illness (February 2018)
- Western Health and Social Care Trust 2017/18 Financial Savings Plan (October 2017)
- South Eastern Health and Social Care Trust 2017/18 Financial Savings Plan (October 2017)
- Northern Health and Social Care Trust 2017/18 Financial Savings Plan (October 2017)
- Continuing Healthcare in Northern Ireland: Introducing a Transparent and Fair System (October 2017)
- Belfast Health and Social Care Trust 2017/18 Financial Savings Plan (October 2017)
- Reshaping Stroke Services in Northern Ireland (September 2017)
- Reforms of the Social Fund's Funeral Expenses Payments Scheme (September 2017)
- Inclusive Growth Plan for Derry City and Strabane District (August 2017)
- Department of Health innovation scheme consultation (June 2016)
- Health and social care reform and transformation (February 2016)
- Northern Ireland’s non-domestic rating system (January 2016)
- Donaldson Report recommendations (May 2015)
- Individual funding request process consultation (May 2015)
- Programme for Government (2016-21) Framework consultation