Publications
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Living and dying with advanced heart failure: a palliative care approach
Published by the Scottish Partnership
for Palliative Care
March 2008 (ISBN:
978-095423968-8)
Endorsed by the Scottish Government and the National Centre for Advanced Heart Failure, and produced following extensive consultation, the report outlines key issues and themes which should be considered in the ongoing development of local strategies for the palliative care of patients with advanced heart failure.
Palliative and end of life care in Scotland: the case for a cohesive approach
Drafted by a short life working group of the Scottish Partnership
for Palliative Care
March 2008 (A4, 64 pages, no ISBN)
This report provides recommendations to the Scottish Executive for developing a cohesive approach to palliative and end of life care in Scotland. A consultation was carried out prior to submission which indicated widespread support for the recommendations, together with the belief that they would result in significant improvements for patients and families.
A guide to using palliative care competence frameworks
Published by the Scottish Partnership
for Palliative Care and NHS Education for Scotland
March 2007 (ISBN:
978-095423967-1)
Guidance to support managers, teams and individuals to identify appropriate palliative care competences for use within their organisation or workplace.
Joined
up thinking Joined up care ...
Published by the Scottish Partnership
for Palliative Care
Nov 2006 (ISBN:
978-095423966-4)
Report of the Scottish Partnership
for Palliative Care Big Lottery Fund Project: 'Increasing access to palliative
care for people with life-threatening conditions other than cancer'.
Making
good care better
Published by the Scottish Partnership
for Palliative Care
May 2006 (ISBN:
0-9542396-5-2)
National practice statements
for general palliative care in adult care homes in Scotland.
Public
Awareness of Palliative Care
Published by the Scottish Partnership
for Palliative Care
December 2003
(ISBN: 0-9542396-4-4)
Report of the findings of
the first national survey in Scotland into public knowledge and understanding
of palliative care.
Palliative
Care in Community Hospitals in Scotland
A Framework for Good Practice
Published by the Scottish Association
of Community Hospitals and the Scottish Partnership for Palliative Care
September 2003 (A4, 68 pages, no ISBN)
This publication focuses on
one way of enabling people to receive high quality palliative care near
their homes and relatives, in the care of doctors and nurses who know
them and their families - the community hospitals in Scotland.
Palliative Care and People with learning disabilities
Published by the Scottish Partnership
for Palliative Care
July 2003
(ISBN: 1-899751-23-8)
A report from a one day conference
on 11th February 2003 to examine and reflect on the issues of palliative
care and its provision for people with learning disabilities.
Beyond the randomised trial: evidence and effectiveness in palliative care
Published by the Scottish Partnership
for Palliative Care
September 2003
(ISBN: 0-9542396-3-6)
A report from a conference
of the Scottish Partnership for Palliative Care - 10 September 2003.
Rethinking palliative care: An opportunity to explore new challenges
Published by the Scottish Partnership
for Palliative Care
November 2002 (ISBN: 0-9542396-2-8)
A report from a conference
of the Scottish Partnership for Palliative Care -
6 November 2002.
Clinical
Standards for Specialist Palliative Care
Published by the Clinical Standards Board for Scotland and the Scottish Partnership
for Palliative Care
June 2002 (ISBN: 1-84404-066-6)
This document introduces the Clinical Standards Board for Scotland (CSBS)
Clinical Standards for Specialist Palliative Care which were developed
in partnership with the Scottish Partnership for Palliative Care and apply
to specific elements of the service.
National
Care Standards for Hospice Care
Published by the Scottish Executive
March 2002 (ISBN: 0-7559-4745-2)
The National Care Standards for Hospice Care were published by the Scottish Executive on 28 March 2002. As from 1 April 2002 voluntary hospices in Scotland will be regulated
against these standards by the Scottish Commission for the Regulation
of Care.
(the Care Commission)
_____________________________________________________________________
Palliative
Care for all: Responding to need not diagnosis
Published by the Scottish Partnership
for Palliative Care
November 2001 (ISBN: 0-9542396-0-1)
A report from the 10th Anniversary conference
of the Scottish Partnership for Palliative Care - 21 November 2001.
Palliative
Care for young people
aged 13-24 Years
Published jointly by the Scottish Partnership Agency for Palliative and Cancer Care, the Association for Children with Life-threatening or Terminal Conditions & their Families and the National Council for Hospice and Specialist Palliative Care Services
September 2001 (ISBN 1 898447 06 3)
This report provides a guide to what can and should be done to help the ‘in between’ group. It is especially important as the opportunity was taken to involve a relevant reference group of young people in its production. The needs of young people at this time are very different from those of children and adults, and special thought needs to be given as to how to provide for these. This report is not prescriptive about how services should be provided but sets out principles, which all members of the caring team can adapt to local needs.
Sharing
Good Practice
Published by the Scottish Partnership Agency for Palliative and Cancer Care
December 2000 (A4, 14 pages, no ISBN)
A report from a conference
of the Scottish Partnership for Palliative Care held at Stirling Royal Infirmary - 6 December 2000.
Positive
Partnerships - Palliative Care for Adults with Severe Mental Health Problems
Published by the National Council for Hospice and Specialist Palliative Care Services and the Scottish Partnership Agency for Palliative and Cancer Care
May 2000 (ISBN 1-898915-21-0, ISSN 1351-9441)
This report addresses the
palliative care needs of adults with pre-existing severe mental health
problems who develop a life threatening illness and require palliative
care, and those of adults with dementia. It aims to raise awareness in
both the palliative care and mental health arenas of the needs of these
patients, facilitate discussion and partnership between the different
agencies involved, provide guidance about the way forward, and highlight
priorities for research.
A framework for the operation of Managed Clinical Networks in Palliative Care
Report of a Working Party of the Scottish Partnership Agency for Palliative and Cancer Care
February 2000 (A4, 12 pages, no ISBN)
A report from a conference
of the Scottish Partnership for Palliative Care held at Stirling Royal Infirmary - 6 December 2000.
Registration of Nursing Homes for Palliative Care - implications of the Scottish Core Standards
Published by the Scottish Partnership Agency for Palliative and Cancer Care
August 1998 (ISBN: 0-9524864-6-6)
This report should be read in conjunction with the Core Standards for Nursing Homes registered to provide palliative care which were issued by the Scottish Office in April 1998 under cover of NHS MEL (98)21. It is intended to explore further the place of nursing homes in the total spectrum of palliative care and also looks at the implications of the new standards for nursing homes themselves, for health boards as the registering authority and for all the other services with which nursing homes registered for palliative care must develop good links if they are to meet the standards expected.
Reaching
Out: Specialist Palliative Care for Adults with Non-Malignant Diseases
Published by the National Council for Hospice and Specialist Palliative Care Services and the Scottish Partnership Agency for Palliative and Cancer Care
June 1998 (A4, 32 pages, no ISBN)
This occasional paper examines the palliative
care needs of patients dying from progressive non-malignant diseases and
those of patients living with chronic non-malignant diseases. It aims primarily to promote
discussions and action amongst and between:
- providers of specialist
palliative care
- health service commissioners
- providers of education to
health, social and pastoral care professionals
- health professionals caring
for people with a wide range of life-threatening diseases.
Palliative Care in Community Hospitals
Report of a Working Party of the Scottish Partnership Agency for Palliative and Cancer Care
May 1998 (ISBN: 0-9524864-5-8)
This report highlights the role of the Community Hospital in providing palliative care provision as a local resource close to the patient's own home and enable continuity of care from the local family doctor and primary health care team. It provides guidance for those responsible for the planning and delivery of palliative care in community hospitals, and for those in related services who work with them.
Palliative Cancer Care - the integration of Palliative Care with Cancer Services
Published by the Scottish Partnership Agency for Palliative and Cancer Care
August 1996 (ISBN: 0-9524864-2-3)
This paper focuses on the provision of palliative care for people with cancer because it considers palliative care in the light of the Calman/Hine Report and of the NHS priority for cancer services in Scotland. The SPA recognises however that many people with progressive conditions other than cancer could benefit from palliative care. Few of the present services outlined in the paper are currently restricted to cancer patients and the SPA is committed to the development of palliative care services for all who could benefit from them, not only those with malignant disease.
Day Hospice
Report of a meeting of the Health Service Group of the Scottish Partnership Agency for Palliative and Cancer Care
May 1995 (A4, 14 pages, no ISBN)
These guidelines on Palliative
Cancer Care are concerned with the quality of care which should accompany
the treatment of disease, and beyond. They should make a valuable contribution
to the processes of purchasing and providing palliative cancer care with
the goal of reducing the suffering of both patients and their families.
They will also encourage and inform the proper audit and evaluation of
the services provided.
Palliative
Cancer Care Guidelines
Produced in conjunction with the Clinical Resource and Audit Group (CRAG) of the Scottish Office Department of Health
January 1994 (A5, 48 pages, no ISBN)
These guidelines on Palliative
Cancer Care are concerned with the quality of care which should accompany
the treatment of disease, and beyond. They should make a valuable contribution
to the processes of purchasing and providing palliative cancer care with
the goal of reducing the suffering of both patients and their families.
They will also encourage and inform the proper audit and evaluation of
the services provided.
Registered Nursing Homes and People with a Terminal Illness
Report of a Working Group of the Scottish Partnership Agency for Palliative and Cancer Care - a guide to good practice
November 1994 (ISBN: 0-95246864-0-7)
This briefing paper is designed for those whose tasks will include the assessment of need and the management of care. It sets out a statistical outline of prevalence and incidence within health board areas and provides a check list of the special characteristics of the needs/ resources equation for this client group.
Care in the Community for Cancer Patients
Produced by the Scottish Partnership Agency for Palliative and Cancer Care - a second briefing paper
1993 (A4, 20 pages, no ISBN)
This briefing paper is designed for those whose tasks will include the assessment of need and the management of care. It sets out a statistical outline of prevalence and incidence within health board areas and provides a check list of the special characteristics of the needs/ resources equation for this client group.
Relief
of Pain and Related Symptoms: The Role of Drug Therapy
This publication has now been withdrawn from further circulation. The content had become out
of date, and the need for a national booklet has been superseded by the
development of local palliative care guidelines in individual NHS Board
areas. Please refer to your NHS Board or your nearest Specialist Palliative
Care Unit for advice - you will find details of these on this website.
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